Tammy
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Just for clarification, fatty liver is not also called cirrhosis of the liver. There's many people who have fatty liver and don't have cirrhosis of the liver.
Helps me figure new symptoms
- Thread starter Ryan7817
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Dysfunkion
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I second everyone that it could be your liver being overloaded anyways but even after I fixed up my diet and I removed a lot of triggers I still have extremely bad reactions to certain things so it could be a complex immune mediated problem going on. I know I do absolutely terrible with THC related anything even in extremely small doses. I can handle only the trace amounts in full spectrum CBD and I'll even feel the entourage effect from all the other micro doses of cannabinoids in them. I also though have always had elevated liver enzymes for no apparent reason to doctors ever since I was a small child and I was diagnosed with Gilberts. They say it is harmless but I highly doubt it and there probably just hasn't been enough research with no real incentive for there to be more with the condition.
I took my first dives into severe though with your symptoms a long time ago and that dip began with a food poisoning incident which also kick started my land meat intolerance. I suspect a barrage of toxins and an infection shocked my system through my liver and afterwards my immune system was completely thrown off and highly sensitized to something in meat. This was before I started any supplements and afterwards it was supplement or die. Couldn't do anything but lumber around the house with no energy in agony like a zombie sometimes and more rarely go for a small trip to the store if I was driven. Then after supplements and going vegan saved me enough to dig myself out with extra nervous system and immune dysfunction. Then years later I got a job where I was exposed to a lot more nasty stuff and I got worse in many otherwise though fatigue wise I didn't dip into severe again till my crash over a year ago from trying saw palmetto on the supplement stack I was on at the time which was like the first one but horrifically worse. I was only able to micromanage my way out of it and since then I've been sensitized to more ways to drag me under with new consistent issues if anything does.
It's really hard to say what could be going on when there is so many layers of regulatory issues with this condition that can be going wrong all at once. From my up's and down over the past few years and recently having covid and how that effected it seems that what is heavily involved is the body isn't able to regulate signalling properly and the signalling is very easily thrown off more.
I took my first dives into severe though with your symptoms a long time ago and that dip began with a food poisoning incident which also kick started my land meat intolerance. I suspect a barrage of toxins and an infection shocked my system through my liver and afterwards my immune system was completely thrown off and highly sensitized to something in meat. This was before I started any supplements and afterwards it was supplement or die. Couldn't do anything but lumber around the house with no energy in agony like a zombie sometimes and more rarely go for a small trip to the store if I was driven. Then after supplements and going vegan saved me enough to dig myself out with extra nervous system and immune dysfunction. Then years later I got a job where I was exposed to a lot more nasty stuff and I got worse in many otherwise though fatigue wise I didn't dip into severe again till my crash over a year ago from trying saw palmetto on the supplement stack I was on at the time which was like the first one but horrifically worse. I was only able to micromanage my way out of it and since then I've been sensitized to more ways to drag me under with new consistent issues if anything does.
It's really hard to say what could be going on when there is so many layers of regulatory issues with this condition that can be going wrong all at once. From my up's and down over the past few years and recently having covid and how that effected it seems that what is heavily involved is the body isn't able to regulate signalling properly and the signalling is very easily thrown off more.
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I just put them on and I feel a little better but I still feel green if that makes sense- that’s why I said poisoned feeling. It’s the worst I have ever felt in my life and that’s saying a lot sense I have had CFS for over a decade.
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Interesting post. I have Gilberts as well. Any supplements you can recommend? What you said about feeling like a zombie is exactly what I feel and isnt the Cfs zombie feeling it’s complexity something else
Dysfunkion
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I kid you not the only thing that helps with that is keeping a stable dose of 2000 mcg no more or less of methyl-b12 every day, D3 + K2 at whatever dose and form works for you, propolis, vitamin C, and for some reason having some raw cinnamon every day. It's been over 7 years of this nonsense now but this is the only combination of things that works for me as long as I'm having some chia seeds and a little peanut butter every morning. If I stop any step in this I just get worse, the worst to stop would be the b12 or the D3 in which I won't be able to function at all if I stop no matter how much food with the stuff I consume. What has to do with my liver, my immune system, or guts I have no idea anymore and honestly I give up trying to get to the bottom of it because I'm a case where only medical practices we don't have available yet will help.
There may be some magical supplement still out there or medication I could add to the daily stack to help just that much more but I'd have to keep experimenting more and I'm so tired and so scared of crashes. One bad crash and my life is on standby for as long as I'm at a lower level functioning and if I'm anything under mild I can't hold up my life enough to even enjoy anything or be productive outside of plow through work like a zombie and rot in my room.
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Being scared of the crash is something I’m familiar with. Even when I was doing good every day I lived in fear for 4 years straight, I wasn’t sure I was living right because everyday was filled with fear .
Dysfunkion
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Basically how I manage to minimize the fear is toe dipping my way into new experiences and testing my limits as softly as I can. When I find a comfortable enough bubble I stick to it and operate in that activity bubble. Eventually you override some of the trauma simply by securely knowing subconsciously what absolutely will and absolutely won't crash you. Like I know for example consuming too much of thing A isn't great for me but I know it has no crash potential so even if I indulge too much and feel more groggy/blah for a while it's ok, so I try to train my nervous system into being able to indulge in more within my limits without triggering the "end is near" doom and gloom every time I even detect there is a single molecule of gluten for example on my plate. On the other hand I know thing B absolutely will and in very small exposures to it so as long as I completely avoid this then I'll be at least ok enough. It helps me to go for feeling human rather than being this shining unrealistic tower of perfectly healthy habits that healthy people never even have to consider doing since they don't face as severe consequences anyways for just eating outside their usual diet too much or an unusual pattern of activities on a holiday break. I also can't function when I'm paralyzed in fear of things as ridiculous as seeing a plate with a chocolate chip cookie on it in front of me or looking at the temperature outside and noticing it's 5 degrees outside my comfort zone.
You'll always have some new experiences in life at some point so I like I said try to ease into them, manage some degree of shock to my nervous system that is unavoidable, and then it gets thrown into my memory of long term experiences to reference so that over time this snow balls into more breathing room through knowing the absolutes in what the situation holds.