Helps me figure new symptoms

[Ryan7817]

I have had CFS for over 10 years and understand the illness but for the last two years I have experienced pressure right under the sternum and burning and I have taken antacids and other stomach medication and been to my local HMO and had endoscopy and CT'S done and they can't figure it out. However, the longer I stand I feel more tired and agitated, and I thought CFS was bad this is way worse than what I been dealing with in the past. My sleep has gotten significantly worse, and I constantly feel bloated. Other symptoms that has come with these triages of symptoms is I can't take certain medications without feeling almost poisoned- I use to be able to smoke weed but I just cant without feeling super tired and ill for a week after doing that. It all feels like its related to this discomfort under the sternum- I thought it was my liver at first, but they took all sorts of test on my liver and nothing other than a fatty liver.

If anyone has had any of these symptoms, please let me know

 

[kushami]

Can’t help with the discomfort under the sternum, but feeling tired and agitated while standing sounds like classic orthostatic intolerance.

The Bateman Horne Center website and YouTube channel have many good resources on diagnosing and managing OI.

Further to that, Prof FC Visser and colleagues have published many scientific papers on the drop in cerebral blood flow that causes OI if you like to read the research side of things. And Dr Peter Novak has also added to the area by showing that cerebral blood flow can fall independently of heart rate and blood pressure during orthostatic testing.

 

[kushami]

Series of short lectures by Prof Visser, with English subtitles:

 

[Cipher]

Does it worsen after food intake?

 

[Mary]

@Ryan7817 - some 20 years ago one glass of wine would make me sick for an entire day and 2 glasses would make me sick for 2 - 3 days. And my digestion in general was all screwed up. My chiropractor who did muscle testing told me my liver was overloaded with toxins, primarily from a job I'd had when I was 19 when I had heavy exposure to chemical solvents. I did a liver detox under his supervision, it took a month and was unpleasant, but by the end of the month my digestion was much better, I could have a glass or 2 of wine without getting sick, etc. I also start ed taking milk thistle and also learned I was low in stomach acid (very common with ME/CFS) and started taking betaine HCL with meals. My digestion has been much better ever since.

I didn't go to my doctor for these symptoms because I'd learned by that time that they wouldn't take me seriously or be able to help me.

You have a fatty liver - that's something you should deal with. It can be caused by too much alcohol or lots of sugary foods, the wrong foods, but in either case it's not a good thing and I've read it can be reversed. I think you should educate yourself about this - change your diet if need be etc. it might be a factor in the symptoms you're having right now.

The fact that certain medications make you feel poisoned sounds very much how I felt when my liver was overloaded with toxins - it was unable to properly process or metabolize substances like drugs and alcohol.

So since your doctors can't find anything, my suggestion is to find a chiropractor who does muscle testing. It's often called applied kinesiology. They can pick up a lot of things at earlier stages than standard testing can. One place to find these practitioners is the Standard Process website. And obviously you can just call and ask if they do muscle testing or applied kinesiology.

 

[cfs since 1998]

I have had CFS for over 10 years and understand the illness but for the last two years I have experienced pressure right under the sternum and burning and I have taken antacids and other stomach medication and been to my local HMO and had endoscopy and CT'S done and they can't figure it out.

Feeling of pressure probably orthostatic intolerance. Burning not sure. You could have more than one problem at the same time. Perhaps have intermittent acid reflux as well.

 

[Ryan7817]

@Ryan7817 - some 20 years ago one glass of wine would make me sick for an entire day and 2 glasses would make me sick for 2 - 3 days. And my digestion in general was all screwed up. My chiropractor who did muscle testing told me my liver was overloaded with toxins, primarily from a job I'd had when I was 19 when I had heavy exposure to chemical solvents. I did a liver detox under his supervision, it took a month and was unpleasant, but by the end of the month my digestion was much better, I could have a glass or 2 of wine without getting sick, etc. I also start ed taking milk thistle and also learned I was low in stomach acid (very common with ME/CFS) and started taking betaine HCL with meals. My digestion has been much better ever since.

I didn't go to my doctor for these symptoms because I'd learned by that time that they wouldn't take me seriously or be able to help me.

You have a fatty liver - that's something you should deal with. It can be caused by too much alcohol or lots of sugary foods, the wrong foods, but in either case it's not a good thing and I've read it can be reversed. I think you should educate yourself about this - change your diet if need be etc. it might be a factor in the symptoms you're having right now.

The fact that certain medications make you feel poisoned sounds very much how I felt when my liver was overloaded with toxins - it was unable to properly process or metabolize substances like drugs and alcohol.

So since your doctors can't find anything, my suggestion is to find a chiropractor who does muscle testing. It's often called applied kinesiology. They can pick up a lot of things at earlier stages than standard testing can. One place to find these practitioners is the Standard Process website. And obviously you can just call and ask if they do muscle testing or applied kinesiology.

Thank you for this. I will look into this. I was almost sure it was my liver and my doctor looked at me crazy because every test looked normal and made me feel insane because I can literally almost feel the pain in that area.

 

[Ryan7817]

Does it worsen after food intake?

1 million percent

 

[Ryan7817]

Can’t help with the discomfort under the sternum, but feeling tired and agitated while standing sounds like classic orthostatic intolerance.

The Bateman Horne Center website and YouTube channel have many good resources on diagnosing and managing OI.

Further to that, Prof FC Visser and colleagues have published many scientific papers on the drop in cerebral blood flow that causes OI if you like to read the research side of things. And Dr Peter Novak has also added to the area by showing that cerebral blood flow can fall independently of heart rate and blood pressure during orthostatic testing.

I will look into this . Thank you for the post. Anything is worth a shot at this point. The doctors at Kaiser aren’t even trying to give me anything at all, I suppose us with CFS should be very much familiar with that at this point

 

[almost]

1 million percent

My similar pain in that area turned out to be due to gallbladder, something many people never think about. Pain will be worse after eating, especially if it is a fatty meal.

 

[Ryan7817]

My similar pain in that area turned out to be due to gallbladder, something many people never think about. Pain will be worse after eating, especially if it is a fatty meal.

Unfortunately they checked that . Maybe they missed it but idk

 

[Ryan7817]

@Ryan7817 - some 20 years ago one glass of wine would make me sick for an entire day and 2 glasses would make me sick for 2 - 3 days. And my digestion in general was all screwed up. My chiropractor who did muscle testing told me my liver was overloaded with toxins, primarily from a job I'd had when I was 19 when I had heavy exposure to chemical solvents. I did a liver detox under his supervision, it took a month and was unpleasant, but by the end of the month my digestion was much better, I could have a glass or 2 of wine without getting sick, etc. I also start ed taking milk thistle and also learned I was low in stomach acid (very common with ME/CFS) and started taking betaine HCL with meals. My digestion has been much better ever since.

I didn't go to my doctor for these symptoms because I'd learned by that time that they wouldn't take me seriously or be able to help me.

You have a fatty liver - that's something you should deal with. It can be caused by too much alcohol or lots of sugary foods, the wrong foods, but in either case it's not a good thing and I've read it can be reversed. I think you should educate yourself about this - change your diet if need be etc. it might be a factor in the symptoms you're having right now.

The fact that certain medications make you feel poisoned sounds very much how I felt when my liver was overloaded with toxins - it was unable to properly process or metabolize substances like drugs and alcohol.

So since your doctors can't find anything, my suggestion is to find a chiropractor who does muscle testing. It's often called applied kinesiology. They can pick up a lot of things at earlier stages than standard testing can. One place to find these practitioners is the Standard Process website. And obviously you can just call and ask if they do muscle testing or applied kinesiology.

Also what sort liver detox were you on? I was on some sort of Amazon pills called liver detox but it didn’t seem great

 

[Ryan7817]

Does it worsen after food intake?

Yes

 

[Mary]

Also what sort liver detox were you on? I was on some sort of Amazon pills called liver detox but it didn’t seem great

@Ryan7817 - the chiropractor who did muscle testing determined what sorts of toxins I was dealing with and based his recommendations on that. Because you have a lot going on, including a fatty liver which is not a benign condition, I think you should have some expert input so my recommendation again is to find a competent chiropractor who does muscle testing. If they know what they're doing, hopefully they can help figure out (1) what's going on with you and (2) what to do about it.

 

[Ryan7817]

@Ryan7817 - the chiropractor who did muscle testing determined what sorts of toxins I was dealing with and based his recommendations on that. Because you have a lot going on, including a fatty liver which is not a benign condition, I think you should have some expert input so my recommendation again is to find a competent chiropractor who does muscle testing. If they know what they're doing, hopefully they can help figure out (1) what's going on with you and (2) what to do about it.

Will any chiropractor help me with this ?

 

[Mary]

Will any chiropractor help me with this ?

Look at my earlier post - you'll have to find one who does this. You can call chiropractors to see if they do this. It's also often called nutritional testing. And you can go to standardprocess.com and they will have a list of practitioners who use their products (very good products) and those practitioners generally do muscle testing. I'm sure you'll have to make some phone calls and do some research but it shouldn't be too hard. I stumbled across all of this by accident in the late 1990's and am eternally grateful that I did.

 

[Ryan7817]

Look at my earlier post - you'll have to find one who does this. You can call chiropractors to see if they do this. It's also often called nutritional testing. And you can go to standardprocess.com and they will have a list of practitioners who use their products (very good products) and those practitioners generally do muscle testing. I'm sure you'll have to make some phone calls and do some research but it shouldn't be too hard. I stumbled across all of this by accident in the late 1990's and am eternally grateful that I did.

I will definitely try. I hope it doesn’t cost too much

 

[Florida Guy]

I agree with Mary, fatty liver is serious. Its called many things, including cirrhosis of the liver and alcoholic disease, though it is not always caused by alcohol. Its more serious than the other things you mentioned because its fatal at end stage so you want to do everything you can to stop it progressing. Diet is important, get a list of food to avoid and food you can eat. No alcohol at all.

Could it be a gallstone causing a problem? Doctors miss a lot of things

 

[kushami]

@Ryan7817 , I can suggest two fairly simple things to try to see whether they help with being upright.

First one is wearing a compression garment, such as knee-high or thigh-high socks, tights, leggings or bike shorts – whichever you think you could manage to put on and tolerate wearing. This will help keep blood in the upper half of your body and reduce blood pooling in the legs when you are upright. Start with a cheaper option and see how it goes. If it proves to be helpful you can pursue getting medical-grade ones later.

Second one is having a sachet of rehydration salts, a plain electrolyte drink or a decent slug of water and a salty snack before being upright. This will temporarily boost your blood volume, helping with low blood pressure (if applicable) and making sure there is enough blood to get to the brain. If this approach helps, you can explore it further with medical advice.

If either of these help, then you probably do have orthostatic intolerance. But if they don’t help, it doesn’t necessarily rule it out. Some people need different or stronger interventions that are best done under medical supervsision.

 

[Ryan7817]

@Ryan7817 , I can suggest two fairly simple things to try to see whether they help with being upright.

First one is wearing a compression garment, such as knee-high or thigh-high socks, tights, leggings or bike shorts – whichever you think you could manage to put on and tolerate wearing. This will help keep blood in the upper half of your body and reduce blood pooling in the legs when you are upright. Start with a cheaper option and see how it goes. If it proves to be helpful you can pursue getting medical-grade ones later.

Second one is having a sachet of rehydration salts, a plain electrolyte drink or a decent slug of water and a salty snack before being upright. This will temporarily boost your blood volume, helping with low blood pressure (if applicable) and making sure there is enough blood to get to the brain. If this approach helps, you can explore it further with medical advice.

If either of these help, then you probably do have orthostatic intolerance. But if they don’t help, it doesn’t necessarily rule it out. Some people need different or stronger interventions that are best done under medical supervsision.

Thank you