help about sleep test :(

[kisekishiawase]

i hope theres someone whos kindly enough wanted to help me

is anyone expert at central sleep apnea and obstructive sleep apnea? im confused why does my symptoms happen randomly. something i consume/take could make it worse. and when my health condition drop it got worse too.

i've had 2 sleep test. 1 was long time ago in hospital but i couldn't sleep troughout the night so it would such a waste. one was recently, a home sleep test with oxymeter, 2 belt, and the nassal cannula (but it keeps getting off my nose)

i used xanax low dose so i could fall asleep easier but later i found out that benzodiazepine prevents from deep sleep and i did notice that i got only light sleep. and i feel fine trhoughout the night (no attack). the result appeared to be in normal range only says some breath flow limitation.

my symptom was started long time ago since i was a child i get awaken in the middle of the night cause i wasnt breathing and it keeps happening ever since. i didnt know what it was back then when i was a child i thought i was too lazy to breathe or i should teach myself to remember to breathe and it will disappear by itself. (didnt know about the autonomic nervous system)

the problem is it happens randomly eventhough it has happened many times since the first attack but sometimes there are times when it didnt happened but sometimes its so terrible it almost killed me and causing me to stay awake.
sometimes i also get what i learn later is breathe flow limitation. i noticed that i am breathless cause my throat was closing when i was about to relax and doze off. but then again it doesnt happen everyday 1 thing i noticed it likely to happened when my health condition worse.

and cause of all that factors it confused me how to be able to detect those 2 issues on sleep lab when the attack is happening not when it isnt. cause it happens randomly. not to mention that sleep lab costs quite a fortune here and to me.

also i read that apnea could cause heart problem and since i do have heart problem theres a possibility that it causes by that or apnea could makes it worse. i cant ignore that.
also that one issue prevents me from any operation that needs sedation/anesthesia which i might need since if the attack strikes me when im couldnt be able to awake i would die.
those 2 problems concerned me but i dont know what to do.

please give me inputs i would greatly appreciate it.

 

[*GG*]

Please break up that "paragraph" very hard to read. FYI

GG

 

[kisekishiawase]

i edited it. is that what you mean?

 

[maddietod]

I think you're saying that you didn't have sleep issues during your 2 sleep tests.

Can you go to your doctor with a paper where you write down your sleep symptoms for a week? You could ask for a trial of a CPAP machine if you and your doctor agree that apnea is likely.

 

[heapsreal]

Generally i think sleep tests are only useful to rule out apneas and or rls. If they find u have insomnia or dont reach deep sleep then they dont have treatments to offer unless your treated by a very switched on neurologist. Otherwise one gets a brochure about avoiding caffeine and other stimulants late at night, going to bed at the same time every night and use the bedroom for sleep and sex only, oh and also exercise daily. So all the crap we have tried before.

A recent utube of dr peterson mentions that many cfs/me people will need to be on long term sleep meds to treat the sleep dysfunction. Sleep meds may not be perfect but i think quanity over quality can help. If one can get by on supps for sleep then great. Some will say its the sleep meds that have destroyed your ability to sleep but how do they explain the other ME patients who's sleep is destroyed who havent used any meds for sleep. its picking the best of a bad situation.

keep the doses low and if u have the need to increase the dose due to poor sleeping then stop and look for alternative treatments. Also have a few things up your sleeeve and rotate the crap out of them to avoid tolerance to avoid dosage escalation and tolerance. Thats the best i have come up with.

Would like to see improve on above treatment protocol of rotating the crap out of everything

 

[kisekishiawase]

heapsreal no i wasnt talking about insomnia and thats not why i get sleep test. but for Central sleep apnea and Obstructive sleep apnea
madietodd well the first test i wasnt sleep during the test. and the second i sleep lightly and the symptoms didnt appear.
i dont think thats possible cause from what i heard they need the result from the test/diagnosis to set the treatment.

 

[maddietod]

Yes, you're right. After a sleep test that shows apnea, you go in for another night where they fit you with the CPAP machine and adjust it during the night.

I think it's dangerous to take sleep medications if you have apnea, since the apnea wakes you up for a good reason. I can't see any way around doing the test again. Can your doctor help you figure out a safe way to make sure you sleep during the test?

 

[caledonia]

It does sound like you will need to retest.

I've had a similar problem where an official sleep test didn't find any apneas, but I still have a problem where I wake up several times a night with my heart racing and pounding. Of course, the problem didn't happen during the sleep test.

I used a pulse oximeter at home, and it did show a couple of oxygen drops of a couple of seconds in three hours. I believe that this is caused by my stopping breathing (sometimes I catch myself gasping for breath) and that this is more of a central sleep apnea issue, as the problem is intermittent.

I've discovered that I can make the problem better by getting B12 supplementation or by eating beef with all of my meals. If I eat chicken (contains less B12) the problem is worse. If I stop taking the B12 the problem gets worse. This might have something to do with methylation, and signalling of the vagus nerve during sleep to keep you breathing. Your organs need glutathione to signal each other properly. You need proper methylation to make glutathione.

As far as light stage 4 sleep, this is a neurotransmitter problem, which also makes it a methylation problem, as methylation is required to make neurotransmitters. It can also be a gut problem as most neurotransmitters are made in the gut.

See the links below my signature for more info about methylation.

If you have obstructive sleep apnea, the treatment is a CPAP mask, so you'll need an official test and a doctor for that.

So my suggestion would be to retake the test, and hopefully get a good one this time so you can get anything diagnosed that a doctor can help you with. Then also look into the B12/methylation thing.

Stay away from sleep meds and benzos if possible, as there are various problems with those.

ps. if you need an operation, the best place to have a problem is in the hospital where you're being monitored, so I don't know if I would worry too much about that. If you have ME/CFS and/or MTHFR mutations. i. e. methylation problems, you should be careful about what type of anesthesia is used. Do a google search for "anesthesia and CFS" for recommendations.

 

[kisekishiawase]

madietodd its not a sleep medication though but to help calm me down. because since im insomnia its already hard for me to sleep at night but i have to make sure i can sleep and if i dont the money for the test will be wasted (which is not cheap to me) and i waste the chance. those issues put more pressure on me.
caledonia thanks for relpying so then what happened after you catch it on oximeter? well my gut is a mess so i guess that contributes to it. thats why if i dont watch my diet my condition got worse.
i noticed something that i consume can make it worse/triggers it. also when my condition drop. some muscle relaxant makes it worse. i also remember long ago whenever i got an injection i got more CSA. i dont know if thats related. the injection was mix of supplement, (b complex, calcium, selenium, etc)
i also think i should purchase a device to detect it at home that i can use often. (if only its since long time ago i guess i can detect it better) but i consider the cost and also if it could be effective/accurate cause i read read many studies that says many apnea patients don't necessarily desaturate. but i would see if i can get oximeter. also the quality of the device plays a part. the better the more expensive.

 

[physicsstudent13]

klonopin seems to treat sleep apnea, it may allow deeper sleep