Has anyone had experience with the CFS Discovery Clinic in Donvale, Melbourne, Aust.

[Kenny Banya]

I reckon you would notice the beta blocker fairly easily if it was helping anxiety,balance and rapid energy sapping problems decrease drastically vs no meds but I suppose there are people for who its a more subtle difference

I think the beta blockers make me even more tired

 

[Kenny Banya]

I think the beta blockers make me even more tired

Just checked - tiredness is a common side effect

 

[Murph]

Just checked - tiredness is a common side effect

fwiw I get some benefit from bb at even a very low dose. I've gone as low as 5mg a day. [i got put on 10mg morning and same at night when I was first diagnosed.]

The ability to lift your heart rate helps you respond to things. If a high dose is suppressing your hr too much, try dialing it down. It may be the bb works by reducing auto-antibody activity, which may be why even a small dose can be helpful.

Somethign to consider, at least.

 

[mrmichaelfreedmen]

Rashmi Cabena is leaving CFS Discovery in May

@Kenny Banya why are there so many doctors coming and going at that clinic? It's kinda sad as they seem decent.

 

[Kenny Banya]

@Kenny Banya why are there so many doctors coming and going at that clinic? It's kinda sad as they seem decent.

Rashmi decided to investigate more 'alternative/ holistic' avenues
That said, CFS Discovery is at the forefront of research for a practicing clinic
https://pursuit.unimelb.edu.au/articles/chronic-fatigue-syndrome-a-kick-in-the-guts

 

[Kenny Banya]

fwiw I get some benefit from bb at even a very low dose. I've gone as low as 5mg a day. [i got put on 10mg morning and same at night when I was first diagnosed.]

The ability to lift your heart rate helps you respond to things. If a high dose is suppressing your hr too much, try dialing it down. It may be the bb works by reducing auto-antibody activity, which may be why even a small dose can be helpful.

Somethign to consider, at least.

Yeah, I'll revisit it after I finish methotrexate in a few weeks time

 

[mrmichaelfreedmen]

Yeah, I'll revisit it after I finish methotrexate in a few weeks time

Thanks for your reply above. Also is the methotrexate related to your CFS treatment?

 

[mrmichaelfreedmen]

I think the beta blockers make me even more tired

I think beta blockers block the effects of adrenaline, so when your realy exhausted you just drop like a brick. Know a few people on beta blockers and they say just that...

 

[Kenny Banya]

Thanks for your reply above. Also is the methotrexate related to your CFS treatment?

I 'overemphasised' my hand & wrist joint soreness to the rheumatologist, so I could test MTX for CFS.
Doesn't look like it has worked & the MRIs of both hands show no indication of rheumatoid arthritis (or osteoarthritis for that matter). I have to conclude that the soreness is ME/CFS/FM symptomatic.
I will give MTX three more weeks to be sure.

 

[EtherSpin]

I 'overemphasised' my hand & wrist joint soreness to the rheumatologist, so I could test MTX for CFS.
Doesn't look like it has worked & the MRIs of both hands show no indication of rheumatoid arthritis (or osteoarthritis for that matter). I have to conclude that the soreness is ME/CFS/FM symptomatic.
I will give MTX three more weeks to be sure.

just saw your other thread, I'm really hoping you have luck with ascertaining some certainty about the MTX over the next few weeks and can decide what to do without any doubts!