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Hi guys,
I was wondering if anyone who has followed the Neil Nathan protocol has gotten better and if the mycotoxin urine test you did was accurate?
I have been sick for quite some time and did welchol for 9 months with no progress. This whole thing has confused me more than anything as in my experience, people with mold illness seem to get better on a binder after a few months, which never happened for me.
I was seeing a doctor who follows the Shoemaker protocol but I just didn't feel like it was a good fit. He is very well known in the mold world, but I just felt he put way too much stock into Shoemaker and the new GENIE test, but I have always felt like we are missing something. I am very reactive to medications and feel like I can never get a head in treatment without hitting a roadblock days into it due to sensitivity.
We did all Shoemaker labs which were out of whack but recently most have almost become normal, even though I found mold in my apartment. My neuroquant showed no lyme nor mold, but I have tested positive on DNA Connexions and Igenex for lyme, but GENIE showed no lyme or mold exposure and just straight up CIRS which doctor believes is just from residue inflammation.
One thing I don't understand is how I have made no progress at all. There is no way I have lived in moldy houses for 6 years, but none of my symptoms budge. When I first got sick it was during a pregnancy and after that all hell broke lose. I was not aware of any mold in the home nor did I ever see any, but I lost the baby.
Now I am seeing a new doctor who follows Neil Nathan and seems to take a much more gentle approach and I am hoping my body will react better to this. The doctor also thought I have mast cell, though my old doctor said this is just a fad. He said histamine is an issue in mold illness but not for reasons the top doctors such as Afrin think, and he is wrong. So the next plan with current doctor is to do trial stabilizers for mast cell and 5 different binders that go after certain molds. If you follow Shoemaker, you will know he only believes the binders that work are CSM, welchol and one other (I think okra something), due to a positive charge, but Nathan's work believes the other binders (charcoal, clay, chlorella work).
I have also attached my Great Plains test. Wondering if anyone else who did this test found it accurate. Also another test a lot of people disagree about.
I was wondering if anyone who has followed the Neil Nathan protocol has gotten better and if the mycotoxin urine test you did was accurate?
I have been sick for quite some time and did welchol for 9 months with no progress. This whole thing has confused me more than anything as in my experience, people with mold illness seem to get better on a binder after a few months, which never happened for me.
I was seeing a doctor who follows the Shoemaker protocol but I just didn't feel like it was a good fit. He is very well known in the mold world, but I just felt he put way too much stock into Shoemaker and the new GENIE test, but I have always felt like we are missing something. I am very reactive to medications and feel like I can never get a head in treatment without hitting a roadblock days into it due to sensitivity.
We did all Shoemaker labs which were out of whack but recently most have almost become normal, even though I found mold in my apartment. My neuroquant showed no lyme nor mold, but I have tested positive on DNA Connexions and Igenex for lyme, but GENIE showed no lyme or mold exposure and just straight up CIRS which doctor believes is just from residue inflammation.
One thing I don't understand is how I have made no progress at all. There is no way I have lived in moldy houses for 6 years, but none of my symptoms budge. When I first got sick it was during a pregnancy and after that all hell broke lose. I was not aware of any mold in the home nor did I ever see any, but I lost the baby.
Now I am seeing a new doctor who follows Neil Nathan and seems to take a much more gentle approach and I am hoping my body will react better to this. The doctor also thought I have mast cell, though my old doctor said this is just a fad. He said histamine is an issue in mold illness but not for reasons the top doctors such as Afrin think, and he is wrong. So the next plan with current doctor is to do trial stabilizers for mast cell and 5 different binders that go after certain molds. If you follow Shoemaker, you will know he only believes the binders that work are CSM, welchol and one other (I think okra something), due to a positive charge, but Nathan's work believes the other binders (charcoal, clay, chlorella work).
I have also attached my Great Plains test. Wondering if anyone else who did this test found it accurate. Also another test a lot of people disagree about.