• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Has anyone diagnosed ME also received a Long Covid diagnosis?

L

livinglighter

Senior Member
Messages
379
*****UPDATE****

I've received a Post-Covid 19 diagnosis that has been of no use as they wanted to refer me back to the ME/CFS fatigue clinic!

I'm currently challenging the care I'm receiving because I experienced outright denial to acknowledge and record my neuro symptoms experienced post covid - apparently because it's not clear whether ME/CFS or Covid would be the cause of it.

They did record disordered breathing patterns that cause shortness of breath. Apparently a result of the brain changing the way I normally breathe. How does anyone know if this doesn't also happen in pwME if no one checks?
 
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