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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Has anyone been tested for thiamine deficiency?

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Hi all, I'm new to the forum and just like you I'm trying to figure out just what has been causing my severe problems for at least a year now.

I came across a very interesting story about a girl who was diagnosed with CFS and suffered for years before being diagnosed as having a thiamine deficiency. http://www.mecfscanberra.org.au/docs/stories/bronwyn.htm


In this case it appears that it was not a dietary deficiency but some sort of metabolic or mitochondrial defect. I also found two more people on a dysautonomia forum who were also completely cured with thiamine.

Has anyone here had their thiamine and other B vitamin levels tested? (besides B12)