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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thank you for the replies.
I have been looking at things my specialist has been basing my treatment plan on and I feel sceptical.
Sparrow, I feel very similarly to you, the only times I feel more relieved of the fatigue is if I am not taking anything.
My specialist thinks that it can be cured but only with a lot of drugs, but they don't seem to work for me. I'm not sure.
Watch the Methylation Made Easy videos (the link's in my signature). This explains how glutathione depletion due to a partial methylation block causes ME/CFS and how to fix it. Drugs generally only mask symptoms and can make you worse due to adding more toxins to your already poorly functioning detoxification system.
I wonder if there are people who slowly but surely (after they achieve a high percentage of recovery) slowly build up muscle and a little cardio and end up achieving normal function by having a body with above average muscle tone. I hear (as Im sure you all do) of all manner of people who are personal trainers or nutritionists who claim to have healed themselves from CFS and I generally observe that they aren't saying much about cognitive symptoms or POTS , sometimes not even the long delay PEM so without being judgemental I find it hard to suss out whether they had actual ME/CFS or an unfortunate stint of post viral fatigue or some other mysterious malady.