S
Esther Comments:
"Just to make it even clearer than it was in the original post, this all came from off the cuff responses to questions about which treatments could be helpful, rather than Mikovits putting together anything like a suggested treatment plan. It's still early days with all this." ----sorry if OP was unclear to anyone!
Hi All,
In the Q & A portion of her presentation (Jan 22, you can find it on youtube or on this site) she was asked what things patients could do to help NOW. Her responses were along these lines:
*Suggests non-steriodial anti-inflammatories may help by reducing inflammation.
*Suggests taking a supplement which is proven to upregulate Natural Killer (NK) Cell function.
*Glutathione & N-Acetylcysteine & Anti-oxidants in general.
*Emphasized strongly the importance of finding Quality "supplements" as those which not could potentially harm (*MY COMMENT* this is where patient collaboration could be helpful to see which over the years *have* been the most Quality)
* Thought getting off "the Pill" could potentially help women since progesterone upregulates XMRV in Laboratory
Okay so most of us take one, two, or a quite larger number of supplements. Has anyone tried to modulate their supplements to be in more line with her above suggestions? Have the results been pretty much the same, better or worse?
In any case, I think for those of us who are convinced that most CFS involves an XMRV infection ...
(after all two of the negative studies were done by the Pyschiatric Lobby in the UK and Netherlands... the same people who brought us such great one-liners as:
"Of course CFS/ME is real, it is really in their heads!")
... I think it would be a great idea to remodulate our supplement intake to take into consideration her suggestions in the future if no-one has tried already! There's every reason to believe it would be helpful.
Take Care, better health to all, and respond away! =)
john
"Just to make it even clearer than it was in the original post, this all came from off the cuff responses to questions about which treatments could be helpful, rather than Mikovits putting together anything like a suggested treatment plan. It's still early days with all this." ----sorry if OP was unclear to anyone!
Hi All,
In the Q & A portion of her presentation (Jan 22, you can find it on youtube or on this site) she was asked what things patients could do to help NOW. Her responses were along these lines:
*Suggests non-steriodial anti-inflammatories may help by reducing inflammation.
*Suggests taking a supplement which is proven to upregulate Natural Killer (NK) Cell function.
*Glutathione & N-Acetylcysteine & Anti-oxidants in general.
*Emphasized strongly the importance of finding Quality "supplements" as those which not could potentially harm (*MY COMMENT* this is where patient collaboration could be helpful to see which over the years *have* been the most Quality)
* Thought getting off "the Pill" could potentially help women since progesterone upregulates XMRV in Laboratory
Okay so most of us take one, two, or a quite larger number of supplements. Has anyone tried to modulate their supplements to be in more line with her above suggestions? Have the results been pretty much the same, better or worse?
In any case, I think for those of us who are convinced that most CFS involves an XMRV infection ...
(after all two of the negative studies were done by the Pyschiatric Lobby in the UK and Netherlands... the same people who brought us such great one-liners as:
"Of course CFS/ME is real, it is really in their heads!")
... I think it would be a great idea to remodulate our supplement intake to take into consideration her suggestions in the future if no-one has tried already! There's every reason to believe it would be helpful.
Take Care, better health to all, and respond away! =)
john