Hard to take care of self out of my comfort zone

[vision blue]

hh

 

[MariaMagdalena]

Can't offer much in terms of suggestions, but can offer understanding and camaraderie, for what its worth. I too am experiencing that ever shrinking world syndrome. Part of that is a body that is EXTREMELY intolerant to the slightest change. I also do best in a contained environment where I can control most variables.

I am mostly housebound, but this is a recent development for me as I've gone from being moderately active (can't work a job but going out for shopping and church several times a week where outings of 3 hrs several times a week usually didn't provoke PEM) down to being able to handle a 1-2 hr outing IF rest the rest of the day and put a day between these outings. I'm not sure event that this is not too much activity. Can't get out of an extended crash that started in July.

I can't imagine trying to move with all of this. How discouraging to try going outside of your comfort zone only to be assailed by noxious stimuli. Do you have any real life support?

 

[Moof]

i've got ascending red bumps theyve reached my neck about now. seems like bugs of some sort becasue i get the biggest clusters at skin creases and clothing friction points - but also in other places too. And they often, though not always, forma line.

I can't be much help, either, but the bugs may be bed bugs – their bites do often appear in lines. I've only ever been bitten once, staying at a hotel, but I had a nice neat line running up my stomach! Luckily, I didn't take any of them home with me, as there was no repeat. Maybe look up pictures of the bites to see if they compare to yours? At least that might one question you can answer, at least.

I'm really sorry you're having such a bad time. I saw your other post – if you could say which country you live in, people might be able to make some suggestions for you?

 

[Rufous McKinney]

although i have not been able to drive on higways anymore for years near, i have emjoyed looking out window when someone else drives- not so any more...The two highways near killed me. Thought i'd get an attack So visually overstimulating- coudln't bear it

I was just recently in an exotic foreign country visiting my new grandaughter. I am retired. So I was gone for several months. I am so lucky. It was REALLY HARD to get there, be there, and get back REALLY HARD.

so its the Sunday field trip, in an exotic foreign country, and my son -in- law is driving and I am in the front seat with my neck benefiting from the head rest. So figure this field trip is like participating in Desire # 2 on one's lifetime Bucket List.

And I had to keep my eyes closed, mostly....as we drove up to 9200 feet in the Sierra Madres.

Its like you've died, gone to heaven, and your wearing a blindfold.

At 9200 feet, this forest is covered in wildflowers. In full bloom. But because I had kept my eyes closed for most of the drive up there: I was slightly able to BE THERE in the flowers...for about an HOUR.

For me its BOTH that my vision is severely blurry, a major symptom that just goes on and on, and my brain cannot process these inputs. So there is this profound WOOZY DIZZY BLURRY exhausted DEPRECIATION.

And its so depreciating.

 

[Pearshaped]

@vision blue
Oh dear,i can relate.i have my eyes closed with eye-mask on when someone drives me to the Doctors.
oh and air-fresheners -Nightmare!

Do you have relatives,neighbours or friends who are willing to come over and prepare food or help with anything else?

It could help to step back for a while in order to not being forced to step back permanently.if you know what I mean.

 

[vision blue]

ll

 

[vision blue]

ll

 

[Pearshaped]

Im sorry your friends live so far away and that they don't take it seriously.

What about a getting a housekeeper or if you would pay a neighbour for doing some task for you? Or a youngster who needs sime pocket-money?

If you are on your own its even mote important to not overdo it.but easier said than done.

I was suspected to have MCAS but i don't have it really,just high histamine spikes after certain foods but i can manage.
what i do have is MCS.(Multi-chemical-sensivity)

 

[vision blue]

aa

 

[southwestforests]

That, with the "high grasses";

a bonus: i guess from the high grasses or a pet-infested house, i felt a couple hours late ra crawling sensation near ankle. didn't see anythign, but then a bunch of red bumps appeared at ankle. kept feeling crawling though, and within a day or so, i've got ascending red bumps theyve reached my neck about now. seems like bugs of some sort becasue i get the biggest clusters at skin creases and clothing friction points - but also in other places too. And they often, though not always, forma line. There's dozens of them. Small red spots. then when i scratch, i break the skin. have no idea what it is; can't see a thing. still get the crawling senatio.n left anke.

Brings to mind,
https://www.aocd.org/page/Chiggers

Chiggers also known as red bugs, harvest mite, scrub mite or bête rouge are not insects, rather they are close relatives of the arachnids, which include spiders and ticks. They belong to a specific family of mites called Trombiculidae. Chigger mites can be found worldwide; however in the United States only 2 species are bothersome to humans. In North America Eutrombicula alfreddugèsi (also called Trombicula irritans) is the most problematic.

The larval form of the chigger mite is extremely small, with an average body diameter ranging between 1/150 to 1/120 inches. Their small size makes them nearly invisible with the naked eye. The larvae are yellow, orange, or light red in color and have six legs compared to the adult, which are bright red with eight legs. It is the larval forms that are the culprits of chigger bites. The adult form is not parasitic. Chigger mites are typically found outdoors on low lying plants near tall grassy wooded areas or around water. They attach to clothing and migrate on the skin to look for an optimal feeding site. Contrary to most belief, chiggers do not burrow into the skin.

more on page

See also: https://entomology.ca.uky.edu/ef630

Chiggers, the immature stage of certain mite species, most frequently occur in overgrown brushy or grassy areas, especially where small rodents are abundant. Also, they may be congregated in shady, humid areas near stream banks, under or around trees, or in berry thickets.

The body’s reaction to digestive enzymes that chiggers use to liquefy skin cells causes the rash, intense itching, and misery that begins a few hours after they have fed. Chiggers tend to attach where the skin is thin, tender, or wrinkled, or where clothing is tight. They do not burrow into the skin, do not feed on blood, and do not carry diseases. If undisturbed, these mites may stay attached and feed for three or four days.

 

[vision blue]

ss

 

[MariaMagdalena]

how would you describe what your reactions are when things are changed from how you;ve set them up?

Hi @vision blue Could you restate your question? I'm not comprehending but my brain is pretty bad today so...