taniaaust1
Senior Member
- Messages
- 13,054
- Location
- Sth Australia
I'm very nervous right now as I'm unsure if I'm taking the right route with things but it appears I may be but so much could go wrong with this.
As many of you are aware, I'm spending nearly all my time in bed and today when chatting to the person who did my disability plan (NDIS plan, I'm in Australia) and pointing out to her that my illness had been trivalised in it, she FINALLY has understood just how unwell I am. (I did previously tell the assessement I was mostly bedbound but obviously that had not really got through to them).
She's suggested that I apply for a partial guardianship order to be put onto me so I can get all the support I'm really needing covered. Without this I cant get ongoing advocacy for me, I cant have someone I can just call in emergencies for advice. I cant have someone to help me with things like when I have issues with the bank (I cant even often prove who I am on the phone when I need to phone bank as I often fail to answer their questions properly with my memory issues, 3 wrong and you get your account closed on you). I still need help to get my NDIS support put in place and have not been able to manage this myself (the support coordinators who were supposed to help me with that only sorted one thing out though it was granted back at the start of Aug).
She says with partial Guardianship orders, the people "work with you and don't take over".. I'm scared but have agreed to apply to have a guardianship over done over me (it will done by tribunal) so I can get all the support I'm needing. I really hope I'm doing the right thing esp when ME/CFS is so badly understood (I said her I wish to maintain all my own choices with my healthcare stuff and dont want another involved in that who may not know enough about ME/CFS).
Can anyone advise me or say anything about all this?
@AndyPandy
As many of you are aware, I'm spending nearly all my time in bed and today when chatting to the person who did my disability plan (NDIS plan, I'm in Australia) and pointing out to her that my illness had been trivalised in it, she FINALLY has understood just how unwell I am. (I did previously tell the assessement I was mostly bedbound but obviously that had not really got through to them).
She's suggested that I apply for a partial guardianship order to be put onto me so I can get all the support I'm really needing covered. Without this I cant get ongoing advocacy for me, I cant have someone I can just call in emergencies for advice. I cant have someone to help me with things like when I have issues with the bank (I cant even often prove who I am on the phone when I need to phone bank as I often fail to answer their questions properly with my memory issues, 3 wrong and you get your account closed on you). I still need help to get my NDIS support put in place and have not been able to manage this myself (the support coordinators who were supposed to help me with that only sorted one thing out though it was granted back at the start of Aug).
She says with partial Guardianship orders, the people "work with you and don't take over".. I'm scared but have agreed to apply to have a guardianship over done over me (it will done by tribunal) so I can get all the support I'm needing. I really hope I'm doing the right thing esp when ME/CFS is so badly understood (I said her I wish to maintain all my own choices with my healthcare stuff and dont want another involved in that who may not know enough about ME/CFS).
Can anyone advise me or say anything about all this?
@AndyPandy
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