MonkeyMan
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks for posting the link! I did the research (a lot!) to improve my own health, and I thought that sharing the results would interest - and possibly help - others. It's on an all-in-one blog, but people can avoid it by watching the video here:
It's worse coz all that glucose that your cells can't use has to go somewhere, and eventually, once the regulatory mechanisms fail, causes symptoms all on it's lonesome.Re the similarity to starvation this is curious. The experience on TV which seems most like pwme life is The Island. They basically starve on the island they're dumped on as they don't have adequate survival skills. But the combination of symptoms they describe is weirdly similar.
I eat plenty of food, I'm a bit overweight so I'm not literally starving, but if the biochemical process of converting glucose is faulty, perhaps the knock on consequence feels pretty similar to not having eaten at all?
I take 100mg 1x/day of R-lipoic Acid, 300 mg 1x/day of benfotiamine, and 500 mg 2x/day of acetyl-l-carnitine. I read a lot of official and not-quite-official recommendations about maximum dosages, but I can't remember the details. I generally avoid exceeding the maximum recommended on the bottle.What type of quantity are you taking @TracyD ? Do you take one tablet (100mg)?
My l-carnitine is 500mg too
I take 25mg Benfotiamine so you're taking a huge dose in comparison (300mg) is that deliberate? How did you decide on quantity?