Hi all
I’m new, i've been lurking around as a guest for a bit and have now joined. So Hello!!
A couple of days ago i had an appointment with my GP and he told me that it was very unusual to have ME for so long at the level i am.
So i’m feeling like more of a freak than usual and really want to know that i’m not the only one.
I got ME when i was 14/15 and have had it for about 15 years. I am currently about 30% on the activity scale (able to go out about once a week for a short trip) and have been between 20% and 30% for the last couple of years. A few years ago i was up to 40% maybe a bit higher.
I don’t seem to have the periods of good times some people have.
I just need to know that i’m not a total freak, that i’m not the only person who has been so ill for so long.
I hope it is ok that i posted this question here.
Lorraine - new member
I’m new, i've been lurking around as a guest for a bit and have now joined. So Hello!!
A couple of days ago i had an appointment with my GP and he told me that it was very unusual to have ME for so long at the level i am.
So i’m feeling like more of a freak than usual and really want to know that i’m not the only one.
I got ME when i was 14/15 and have had it for about 15 years. I am currently about 30% on the activity scale (able to go out about once a week for a short trip) and have been between 20% and 30% for the last couple of years. A few years ago i was up to 40% maybe a bit higher.
I don’t seem to have the periods of good times some people have.
I just need to know that i’m not a total freak, that i’m not the only person who has been so ill for so long.
I hope it is ok that i posted this question here.
Lorraine - new member