Well I hesitate posting cuz last time I posted how well I was doing I crashed the next day
.. But .. I just have to write about what is goin ON!!!
I am no longer havin the major sweats... just a few warm flashes now and then...
But amazing things are happening... I just browsed through the last two weeks of my notes and holy moly... I only spent 2 of those days on the couch...!!!
Prior to starting Rituxan - I could not drive myself, was on the couch 80% of of the time, SEVERE flu like symptoms, "out of body" feeling, dizzy and lightheaded, severe muscle and joint pain, entire spine burns, and severe weakness.
I am now driving everywhere I want to go and don't even think about it...I am BACK in my body, no longer dizzy and weak... Muscle and joint pain have decreased... but still there along with spine pain... but I would say pain is down ummm 25%... GET THIS... I was watchin TV the other night (I am still up till 3am
and I saw this neat exercise machine...and I bought the damn thing!!!!!!!!!!!!!!!!!!!!!!!!! WTH??? I just wish you knew how HUGE that is for me... I could barely get dressed and cook dinner ... let alone think about possibly being able to exercise... I hope I am able to do it... Stay tuned on that one.. But so what.. It is HUGE that I even picked up the phone and purchased it!!!
I am still having to take 4-6 Norco a day for pain and am hoping that I am someday able to decrease it...
In the last week I shampooed my rugs, mopped the floor, groomed both of my Shitzus - ugh, detailed the inside of my jeep, doing outside tomorrow, house is clean, dinners cooked, sold my motorhome and cleaned the whole thing out, been on a few outings, meals out, and today after detailing my jeep and being UP all day and working...I decided i wanted to take Sugar n Spice for a walk on the beach..........................
Ok............Sumthin GREAT goin on around here....and like I said I may crash this week but I am soaking up this new found "life force" like a sponge...and not taking one minute for granted!
I am obviously a "responder" ... so we will see what the future holds... Maybe after 35 years of suffering it is my turn to LIVE now...(where is the happy face with tears flowing)? Most people would just laugh at how excited I am to be mopping my floors, and walking on a beach...
But.............. you ALL.... GET IT!!! There is hope for all of us.... They are on to something... Is it the cure? No one knows at this point but my body says they are ON to something!!!
Stay Strong My Friends!!!