getting worse strange symptoms.

[wolves2626]

I do not know how to start. First I have got many ailments . I was diagnosed with small fiber neuropathy lately after covid infection. I got also other problems like chronic prostatitis, me cfs unsure?, some dermatology problems urticaria and alopecia and some disc problems a tarlov cyst at s1 and mild hernias.

my main problem is my walking ability diminishing day by day. After a 5 or 10 minute walk, first I get weakness down from my back. especially my legs turn into stone and after I feel like walking like a clown about to fall down. my heart races and I need urgent rest.
a great muscle pain and burning settled in first in legs than even in my lateral arm muscles triceps?how my arms even got painful after walk.

I am at my wits end and do not know what to do. does anyone have same sort of problem? problems with walking, muscles and general pain after exercise general muscle pain burning wasting etc. I really afraid I am losing my mind got disabled day by day trying to work in this situation and know I will lose my job in the end. appreciate any suggestions amd help.

thank you.

 

[cheeseater]

Can only offer some thoughts on prostatitis. If the prostate has not gotten to the point where they are trating it, you could try Saw Palmetto. If they are treating it, do not try saw palmetto. OTC supplement, widely available.

 

[hapl808]

I am at my wits end and do not know what to do. does anyone have same sort of problem? problems with walking, muscles and general pain after exercise general muscle pain burning wasting etc. I really afraid I am losing my mind got disabled day by day trying to work in this situation and know I will lose my job in the end. appreciate any suggestions amd help.

Similar symptoms here. Unfortunately a lot of disabilities are just…disabilities. They don't have an explanation or sometimes even a name for a lot of disorders.

If you have pain like that, it's unlikely to be something like muscular dystrophy. You should see a neurologist or neuromuscular specialist if you haven't done that already? Things to look into: multiple sclerosis, ALS, post polio syndrome (possibly caused not just by polio but by other enteroviruses - different from paralytic polio), Lambert Eaton, Guillain Barre, and so forth.

A lot of those can be difficult to diagnose, however, and often difficult or impossible to treat. Wish I had better suggestions, but let me know if you find something. I have all the symptoms of ME/CFS for 25 years, but the muscular problems really started to worsen about ten years ago.

 

[wolves2626]

Similar symptoms here. Unfortunately a lot of disabilities are just…disabilities. They don't have an explanation or sometimes even a name for a lot of disorders.

If you have pain like that, it's unlikely to be something like muscular dystrophy. You should see a neurologist or neuromuscular specialist if you haven't done that already? Things to look into: multiple sclerosis, ALS, post polio syndrome (possibly caused not just by polio but by other enteroviruses - different from paralytic polio), Lambert Eaton, Guillain Barre, and so forth.

A lot of those can be difficult to diagnose, however, and often difficult or impossible to treat. Wish I had better suggestions, but let me know if you find something. I have all the symptoms of ME/CFS for 25 years, but the muscular problems really started to worsen about ten years ago.

thank you for your reply. all I got in my hands is a diagnosis of small fiber neuropathy. I do not think it is contributing my leg or back weaknesses, pain and burning I understand it is possible. I got to think of tarlov cysts as the cause however I am confused I got them in my s1 through s5 nothing related to my arm pain and weakness. Arachnoiditis may be I really dont know , gbs possible. Like you said so a lot of different syndromes may be the reason. I saw lots of neurologists, rheumatologists, neurosurgeons and so on and fed up with their lack of knowledge.

strange thing is I see benefits from cortisone, methylprednisone in lower dosage like 16 mg, contirubutes to my muscle strength walking ability and distance. and I have got crp and wbc markers high often recent times. Something autoimmune or chronic infection wise is going on after covid and deteoriting my health to me.

I will see a neurologist last time to clarify my head about MG and other musscle related diseases may be a muscle biopsy . I really have no other ideas left. EMG's were negative 2 times and only skin biopsy came positive for sfn. All autoimmnue panels were negative either . Only HLAB27 positive.

I will sure let you know If I could find something. It seems tough. thanks again for your valuable comments feel sorry for teh people in same boots with me.