Good morning and thank you all for your answers!
They were really helpful. I've recently seen a so-called "chief immunologist of Ukraine". He is a rather sceptical man, but was open to my treatment ideas. As my major symptom is muscles pain all over the body and low graded fever he asked for additional labs - neuromarkers in order to see how my CNS is affected. He said my immune system is overdriven as a result of high dose interferons in 2013 and he most probably will put me on suppressive therapy: hormons or immunoglobulins. He is not against Valcyte, but commented that this drug is a sort of chemotherapy and if I am not afraid to lose my hair I may go for it, though he thinks it's completely useless at all (not only in my case). This is where I don't agree with him. He will supervise me and that was my goal. Did someone start losing his/her hair while being on Valcyte?
I would also like to try Freddd's protocol which I printed out and showed to the doc. He commented that all the methyl stuff is not bad as it is better absorbed and if I want I may try it. This spring i had been injecting cyanocobalamin and B6 untill I got worse spending one month in between my home and hospital with an excruciating pain in my upper back. Have never experienced that before.
Can I combine Valcyte, methylation and immunosuppressive therapies? What do you think? Wouldn't it be too much? Since the doc approves of everything he will not be very discerning digging deeper to forecast the effects.
They were really helpful. I've recently seen a so-called "chief immunologist of Ukraine". He is a rather sceptical man, but was open to my treatment ideas. As my major symptom is muscles pain all over the body and low graded fever he asked for additional labs - neuromarkers in order to see how my CNS is affected. He said my immune system is overdriven as a result of high dose interferons in 2013 and he most probably will put me on suppressive therapy: hormons or immunoglobulins. He is not against Valcyte, but commented that this drug is a sort of chemotherapy and if I am not afraid to lose my hair I may go for it, though he thinks it's completely useless at all (not only in my case). This is where I don't agree with him. He will supervise me and that was my goal. Did someone start losing his/her hair while being on Valcyte?
I would also like to try Freddd's protocol which I printed out and showed to the doc. He commented that all the methyl stuff is not bad as it is better absorbed and if I want I may try it. This spring i had been injecting cyanocobalamin and B6 untill I got worse spending one month in between my home and hospital with an excruciating pain in my upper back. Have never experienced that before.
Can I combine Valcyte, methylation and immunosuppressive therapies? What do you think? Wouldn't it be too much? Since the doc approves of everything he will not be very discerning digging deeper to forecast the effects.
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