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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am a patient's of KDM, live in Austria, and have been treated by him over 2 1/2 years now. I am on GcMAF since November (add. of using Nexavir + Vit B12 IM injections + some nutrional supplements) and can say that, at first, I felt much better, actually better than I have ever felt ever since I got CFS, for a while. After a couple of weeks, I kinda had a bit of a setback but, that said, I do need to say that I push myself very much since I am still working full time and it is normal for me to have push and crash phases on a regular basis. So it's hard for me to judge whether the GcMAF is not working that well anymore or whether it's just because I pushed myself too much. It could also be, as I believe Judy Mikovits had mentioned, that maybe some of the XMRV/MLV reservoirs might re-activate once GcMAF starts working. I will see him again in March and I guess he will do some blood tests to see how it's been working apart from how I feel of course. FYI, the first injection was IV at the clinic and the rest I inject IM myself since I was advise that I could do this. i did hear that IV are more effective.
I am quite a "typical" CFS patient with very high EBV levels, MLV - related viruses positive, high cytokines, low NK cells, leaky gut etc. etc. etc.
Hope this helps and let me know if you would like to have further info.
I have been taking it for about 7 weeks and it is amazing. I feel like a brand new person and actually I am ready to start exercising, something I haven't done in almost 8 years. I have had the illness since 1990 and this is truly the magic bullet.
Thanks for this poll, but it is going to be hard to quantify as some people respond well within weeks, others feel worse for some weeks or months and then start to feel better. Some don't notice anything for many weeks or months and some never notice anything. Also, we are not all using the same source product.
I don't know how you would do it, but some time marker would make this poll more accurate. This is always the trouble with polls--it is hard to word them in a way to get meaningful statistical results.
I am not going to vote for a while cause my symptoms reactions change all the time (after 4 injections).
I am patient of KDM since 2005. I tested MLV positive (PCR) in October 2010, XMRV positive in December 2010 (culture test). Since November 2011 I am on GcMAF, weekly IV-injection. From my genetic disposition I will need 30 to 40 injections.
When I became patient of KDM I was down to a energy level of about 30 %, now
I am oscillating around 80 %.
Perhaps it works for a few weeks only after which something is up-regulated that counter act the effect of GcMaf.. It seems to me that people are feeling better initially then revert to their initial state.
This is a common symptom of resistance and research should be done to know how to counter act it.