Can we expect that Whitney Dafoe will make fotos of the Kilimanjaro one day?
What's your opinion?
Yes quite possibly, I was basically as nearly bad as whitney is for about 9 months. I was so bad that Im surprised I survived I was actually going comatose for days at a time without being able to eat or drink (I should of been being tube fed), had trouble even holding a spoon due to shaking so much every time I tried to do anything so had to eat with hands.
Due to exhaustion if I woke up I'd eat once a day small amount only and struggled to stay awake and keep my eyes open just to eat that one small meal, couldnt speak for periods due to lost ability to put my language words together (so would speak with a single word or with like made up basic sign language), couldnt handle noise/light, had trouble holding my head up if I raised myself etc. At times I was paralysed to the point I remember one time where I couldnt even move my fingers. I was also in a lot of pain, everything hurt.. inside my bones really hurt, behind my eyes hurt, my skin hurt with the sheets touching..
My child daughter was being my carer and had to do everything for me... including emptying a potty by the bed that I'd actually let myself fall out of bed to use and doing that once a day and trying to eat with hands once a day while laying still in bed was the maximum I could do. I couldnt brush my teeth or do anything.
anyway years later 5? 6? years, I'd FULLY recovered from that (it was a very long slow recovery over years. I personally think that unless one has some kind of miracle cure, the sicker u are, the longer it will take over time to improve and if you get very lucky recover. I recovered quite quickly when I got to the 80% okay mark). I did one of worlds longest marathons (entered a 100K marathon) while i was in remission from this disease and didnt crash from that. I was fully recovered.
The problem is once you have had ME/CFS once, you will always be susceptable at getting this illness again even if fully recovered. It just takes getting a virus going around, being triggered by a vaccination or any of the things which can trigger this illness and you can unfortunately end up back into it (I caught a minor virus thing that seemed just like a small cold going around and it crashed me back into ME/CFS after 2-3 years of FULL remission).
Please call it remission and not "recovery" as its important with the ME/CFS politics. That word 'recovery' and that some of us "recover" is preventing our illness being accepted by some government depts for care support being made available to us hence we need people to use the term "remission" when refering to ME/CFS recoveries