vision blue
Senior Member
- Messages
- 2,000
HI Everyone. been a while since I could log on. Its weird to think after decades of profoud fatigue, I'm now so revved up all the time. Sympathetic nervous system excess feels like 24/7. You'd think that would mean I could finally do more activites, but it does not- get too oversimulated, hypertensive crises, etc. I've been considering mast cell disorders (have plenty of those symtpoms), a recurrent virus (when it started), worening of AI disease (have that as well as CFS), pheochromocytome (my metenphrines in serum are only 1.5 times normal) The sympathetic excess seems to go with autodysfunction with difficulty regulating bp, heart rate, temperature, but not sure. Also wonder if my mother had someting similar. She had had AI thyroid disease bu tthen developed hard to control bp and in retrospect seemed to be revved up all the time.
But as long as I'm updating, wanted to say I remain convince no matter how many years go by that the stimulus for all of this was the dental work that I had bad immune reactions too so long ago. I think that it even gave me the intolerance i've posted about to tyramine (and other biogenic amine) containing foods, since those are very similar in effect to neurotrasnmitters. i mean neurostransitters are amines just like the foods I can't tolerate.
There's only a tiny bit of valication from a quack. when i read carefully to see why a clear greedy scam artist came up with something pretty close to correct (he argues that dental products like Dycal and later added many others to list) caused a neurocutaenous syndrome) and i saw that his very first patient number 1 in all his fake publications was someone who came to him from Sweden where it was there they diagnosed her neuro and other symtpoms as Dycal related toxicity! So that's where he learned of it. His name BTW is Omir Amin in Scottsdale AZ. I'd like to talk to that first patient of his, but i doubt they will put me in touch with her. Perhaps if I offer money for that info he will, since he's apparently very very greedy.
I think the order if i had to guess were: lifelong minor mast cell problem that's common (had dermographia since age 10, digestive issues since age 4 months), and the extenisve dental work with stuff I reacted to badly (after a local allergic reaction, got sick for nearly a year, did not tie it into dental work, fully recovered), then had more dental work maybe 5 years later with explosive clear allergic reaction, followed by increased basophils, followed by what was diganosed as CSF, followed by temperature elevation, followed by eventual autoimmune disease as well. Now fast forward, and we can say followed by symptathetic nervous system/hyperandrergic/dysautonomia. I should add chronic sleep interruptions also set the stagte( the reccruent virus , either zoster or hsv1, gave me what appears to be cranail neuralagia in upper division of trigeminal nerve). STill not sure exactly how neural toxicity from the (allergy to) dental work means hypersenstiviity to foods that mimic neurotranmitters, but tht started with all the other symptoms following dental work. (not just coincidentally follow, have more cause/effect data).
oi, getting very pained from typing so have to stop now, but wanted to update everyone and say hi. Also had an intersting observation. The level of scrutiny on this list is mjuch more thorough and analytic than any other. YOu might say ,well, we're all so desperate. But not true. there are alot of desperate conditions and desperate people out there - and it does not translate to these kinds of discussions. Instead, i think its a symptom we all share. So probably everyone is high in dopamine and nor epi etc. , perhpas years before CFS hit. Note how so many people talk about how they were very active they were before getting sick.
input welcome. i'm stil circling drain and have lost so much weight it is so very scary.
oh shoot, i have one more thing i want to say- i better start a new thread.
But as long as I'm updating, wanted to say I remain convince no matter how many years go by that the stimulus for all of this was the dental work that I had bad immune reactions too so long ago. I think that it even gave me the intolerance i've posted about to tyramine (and other biogenic amine) containing foods, since those are very similar in effect to neurotrasnmitters. i mean neurostransitters are amines just like the foods I can't tolerate.
There's only a tiny bit of valication from a quack. when i read carefully to see why a clear greedy scam artist came up with something pretty close to correct (he argues that dental products like Dycal and later added many others to list) caused a neurocutaenous syndrome) and i saw that his very first patient number 1 in all his fake publications was someone who came to him from Sweden where it was there they diagnosed her neuro and other symtpoms as Dycal related toxicity! So that's where he learned of it. His name BTW is Omir Amin in Scottsdale AZ. I'd like to talk to that first patient of his, but i doubt they will put me in touch with her. Perhaps if I offer money for that info he will, since he's apparently very very greedy.
I think the order if i had to guess were: lifelong minor mast cell problem that's common (had dermographia since age 10, digestive issues since age 4 months), and the extenisve dental work with stuff I reacted to badly (after a local allergic reaction, got sick for nearly a year, did not tie it into dental work, fully recovered), then had more dental work maybe 5 years later with explosive clear allergic reaction, followed by increased basophils, followed by what was diganosed as CSF, followed by temperature elevation, followed by eventual autoimmune disease as well. Now fast forward, and we can say followed by symptathetic nervous system/hyperandrergic/dysautonomia. I should add chronic sleep interruptions also set the stagte( the reccruent virus , either zoster or hsv1, gave me what appears to be cranail neuralagia in upper division of trigeminal nerve). STill not sure exactly how neural toxicity from the (allergy to) dental work means hypersenstiviity to foods that mimic neurotranmitters, but tht started with all the other symptoms following dental work. (not just coincidentally follow, have more cause/effect data).
oi, getting very pained from typing so have to stop now, but wanted to update everyone and say hi. Also had an intersting observation. The level of scrutiny on this list is mjuch more thorough and analytic than any other. YOu might say ,well, we're all so desperate. But not true. there are alot of desperate conditions and desperate people out there - and it does not translate to these kinds of discussions. Instead, i think its a symptom we all share. So probably everyone is high in dopamine and nor epi etc. , perhpas years before CFS hit. Note how so many people talk about how they were very active they were before getting sick.
input welcome. i'm stil circling drain and have lost so much weight it is so very scary.
oh shoot, i have one more thing i want to say- i better start a new thread.