French ME/CFS collaborative research effort

[HTester]

A patient sent me this link to a press release with a Paris dateline from last year. But I've been unable to find further information. Does anyone on PR follow this group?

 

[wabi-sabi]

@HTester is this what you're referring to?

https://www.bmsystems.net/download/...drome-validation-english-CS-ASFC-17072018.pdf

You can take a look at BioModeling Systems at http://www.bmsystems.net/news-press.php that seem to be involved in this research. And the French patient support website seems quite good. It's the Association Francaise du Syndrome de Fatigue Chronique. My French is extremely rudimentary so I don't follow them, but they seem to discuss the new research here
http://www.asso-sfc.org/documents/an-379-Un-modele-therapeutique-innovant.pdf

The BioModeling System website is in English and they list the above press release on their page.

• 2018: PRESS-RELEASE: L’Association Française du Syndrome de Fatigue Chronique (AFSC) change les règles du jeu et s’associe à Bio-Modeling Systems, la première société au monde spécialisée dans la médecine fondée sur les mécanismes pour développer et valider un modèle explicatif et thérapeutique de l’EM/SFC (CFS/ME).

Something about changing the rules of the game in association with the BIo-Modeling people to develop and validate an explanatory and therapeutic model of ME/CFS. Sounds really interesting! I wish I could read more French!

 

[wabi-sabi]

Here is the only other info I've been able to find on the asfc website:

http://www.asso-sfc.org/documents/an-379-BM-system-reponse-a-nos-adherents-1542314165.pdf

I can't find other info online, but the press releases give name and contact info for the head of the scientific advisory council, so that's probably the place to start.