@ Dr Shepherd
By all means pass the following information on to Forward ME Group committee:
Extract from Minutes (my emphasis):
http://www.meassociation.org.uk/2016/07/forward-me-group-minutes-of-meeting-held-on-24-may-2016/
"5. SNOMED
5.1 Christine Harrison said she had asked the Chairman to write to them.
They had replied to the effect that ME, under various different titles, could be found on their website. But when she had tried to access it she was unsuccessful. She had found CFS, and “myalgic” which cross-referenced to CFS, but ME did not appear to exist in the SNOMED system. So if your GP were to diagnose you with ME, that would not be recorded in SNOMED. The Chairman said she would write to them again. Mrs Harrison said she would e-mail the correspondence to the Chairman.
5.2 Members discussed the problem of different parts of the NHS having different computer systems. Dr Worthley said that on the system he used the only classification was Read Codes; SNOMED was not there. Mrs Harrison said that might change when his system was upgraded."
To clarify:
The UK Extension for SNOMED CT can be publicly accessed here, on a free Browser:
http://browser.ihtsdotools.org/
http://browser.ihtsdotools.org/?per....org/api/snomed&langRefset=900000000000508004
A search for
"Myalgic encephalomyelitis" provides the following terms amongst the "matches" offered:
Myalgic encephalitis
Myalgic encephalopathy
Myalgic encephalomyelitis
ME - Myalgic encephalomyelitis
Benign myalgic encephalomyelitis
Myalgic encephalomyelitis syndrome
Within SNOMED CT (for the International "core" version and the various country extensions) these terms are listed under
Synonym terms for " Chronic fatigue syndrome".
SCTID: 52702003 Chronic fatigue syndrome (disorder) viewed under the "Summary" tab:
displays under a single Parent:
Parents
Multisystem disorder (disorder)
SCTID: 52702003
52702003 | Chronic fatigue syndrome (disorder) |
[Synonym terms]
Myalgic encephalitis
Myalgic encephalopathy
[included for the UK SNOMED CT extension]
Iceland disease
Benign myalgic encephalomyelitis
Chronic fatigue syndrome
Myalgic encephalomyelitis syndrome
ME - Myalgic encephalomyelitis
Myalgic encephalomyelitis
CFS - Chronic fatigue syndrome
Chronic fatigue syndrome (disorder)
Viewed under the
"Details" tab for:
SCTID: 52702003 Chronic fatigue syndrome
Great Britain English language reference set
Chronic fatigue syndrome (disorder) is specified as the "Preferred" term.
The alternative terms listed above are specified by an "S" (for Synonyms) and specified as "Acceptable" terms.
So the terms:
Benign myalgic encephalomyelitis
Myalgic encephalomyelitis
(and for the UK SNOMED CT extension)
Myalgic encephalopathy
are searchable terms within SNOMED CT and they display listed as Synonyms under
SCTID: 52702003 Chronic fatigue syndrome.
-----------------------------------------
Postviral fatigue syndrome
Prior to July 2015, all editions of SNOMED CT had the following listings for CFS, ME and PVFS:
Chronic fatigue syndrome (with ME – Myalgic encephalomyelitis and several other related and historical terms listed under Synonyms) was at that point assigned under
two parent disorder classes:
Mental disorder and
Multisystem disorder.
Postviral fatigue syndrome was listed under
Children to Chronic fatigue syndrome.
This arrangement changed last year
( see Forward-ME Correspondence re SNOMED added June 2015 ) with the dropping of the
Mental disorder parent for CFS and its Synonym terms.
This change was applied, initially, to the core International SNOMED CT version and then adopted by all versions of SNOMED CT, as the twice yearly updates to the various country extensions were released.
There was also a change, last year, for
Postviral fatigue syndrome.
In SNOMED CT core International version and country extensions,
Postviral fatigue syndrome now has a different code to
Chronic fatigue syndrome and is no longer listed under
Children to
Chronic fatigue syndrome.
http://browser.ihtsdotools.org/?per....org/api/snomed&langRefset=900000000000508004
The SNOMED CT code for
Postviral fatigue syndrome is
SCTID: 51771007 Postviral fatigue syndrome After → Viral disease
and it has two parents:
Multisystem disorder (disorder)
Post-viral disorder (disorder)
------------------------
In sum: within SNOMED CT,
Benign myalgic encephalomyelitis, Myalgic encephalomyelitis and (in the UK Extension),
Myalgic encephalopathy, are listed under Synonyms under
SCTID: 52702003 Chronic fatigue syndrome
under single Parent:
Multisystem disorder (disorder).
Whereas
SCTID: 51771007 Postviral fatigue syndrome is coded separately under two Parents:
Multisystem disorder (disorder)
Post-viral disorder (disorder).
In November 2015, it was confirmed to me by Karim Nasha, Terminology Specialist, UK Terminology Centre, Health and Social Care Information Centre, that the final update release for Read Codes CTV3 would be changed to reflect the change to SNOMED CT.
"I have moved Xa01F | Chronic fatigue syndrome under a single supertype 281867008 | Multisystem disorder (disorder) as to reflect the SNOMED correction in CTV3...This should be reflected in the April 2016 CTV3 release." (by email 20.11.15)
------------------------
Read Codes
Read Codes Clinical Terms Version 2 and 3 are being retired in favour of adoption of SNOMED CT as a single terminology system.
Read Codes are a coded thesaurus of clinical terms for recording patient findings and procedures in health and social care IT systems across primary and secondary care, e.g. GP surgeries and reporting of pathology results.
The National Information Board (NIB) has specified that all primary care systems adopt SNOMED CT by the end of December 2016 and that SNOMED CT is to be used as the single terminology in all health care settings in England, with a projected adoption date for the entire health system of April 2020.
Information on the schedule for phasing out of Read Codes version 2 (v2) and version 3 (CTV3 or v3) can be found on this page:
http://systems.hscic.gov.uk/data/uktc/readcodes
If you or Forward ME Group committee require further clarification, please let me know. I shall be forwarding a copy of this information to Sonya Chowdhury.
Information in this post is also set out on my site Dx Revision Watch
Changes to SNOMED CT and Read Codes (CTV3) for CFS, ME and PVFS
Post #327 | December 28, 2015
http://wp.me/pKrrB-4aD
Suzy Chapman