Martin aka paused||M.E.
Senior Member
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What do you think? Would like to collect thoughts on that
(Yes I’m desperate)
(Yes I’m desperate)
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So am I.What do you think? Would like to collect thoughts on that
(Yes I’m desperate)
No I did not. But still wanted to try, because of the altered microbiomes found in PWME and some anecdotal improvement stories.Did you have any sibo/bowel related problems Mattie?
That is correct. Too bad that diagnosis came after myI read you were diagnosed with Cervical problems now?
No. There is no way to know that fixing CCI/AAI will improve my ME or Dysautonomia symptoms.So that would be logical that FMT doesn’t work then?
Dear TysonI tried it for 2 months. FMT every other day from the same donor that Dr Sheppard in Tampa, Fl uses. No improvements at all. FMT works for c diff, but not always for ME./CFS
Has there been any study done on the efficiacy of oral vs rectal FMT?
I did it without an antibiotic. I have bloating and hard stools.Dear Tyson
I'm so interested in your experience. I think you have mentioned this once before. Borody apparently had some success. Did Sheppard give you an antibiotic first; or did you do it without antibiotic?
And did you have severe GI problems
There are a number of studies around (into different conditions, but mostly C diff) which have found frozen or frozen and thawed oral FMT capsules to be an effective way of doing FMT.I'm planning to do a full course of FMT this year to treat my dysbiosis and hopefully Crohn's disease / IBD. Just like Mattie my microbiome has been completely destroyed by the same Belgian doctor.
@mattie, You're speaking about pills, orally? Do i understand it correctly?
Has there been any study done on the efficiacy of oral vs rectal FMT?
Not many countries allow it to be done other than for C diff. It is available in Australia for other conditions, costs can range anywhere from about $6,500 to $14,000 though.How are the costs for this therapy?
Would like to collect thoughts on that
(Yes I’m desperate)
One study I read (into Ulcerative Colitis I think) suggested the microbiome alteration in this from FMT holds for up to 21 weeks so I guess one solution would be to do a maintenance FMT procedure every 4 months or so.The bacteria consortium causing the symptoms were able to re-establish themselves. The unresolved challenge is how to stop this bacteria consortium.