This symptom has really ben getting me down lately to. Mine is worse if im over exerting, too mu8ch standing say or a few stretches can bring it on. I try not to take pain relief at all if i can help it - i dont want to add to my toxic burden. I find that going back to bed until it goes away and then aggressive resting helps the most - laying on the sofa, even with cushions doesnt cut it- and soemtimes i have to be dark and no talking or moving for a few hours to start to experience some relief. Yesterday it was unbearable, but after 2 hours in bed the pain had subsided. After this though and for the next few days i am usually completely wiped out.
I do hope you find some relief soon.
Justy x