Dr. Yes
Shame on You
- Messages
- 868
Hi everyone,
My doctor (a rheumy) just prescribed Florinef for neurally mediated orthostatic hypotension (and related problems -- not POTS, to my knowledge). It's fairly mild OH, with a 10-15 mm Hg drop on standing (not always immediately), but whether due to that or to other dysautonomias (TTT positive after nitroglycerin challenge, possible vasovagal syncope) I have a lot of problems with dizziness standing, often even sitting, and can't remain standing long or walk for any reasonable distance..(deconditioning no doubt contributes, as I am virtually bedridden).
Anyway, I didn't have the sense to research it before agreeing to give it a try; now having looked into what others on this site and elsewhere (incl. Cheney) have said about it I'm not sure whether to still give it a try...
Has anyone else (esp. those who haven't yet posted on it) tried it? And has anyone had success treating OH (esp. without POTS) with other natural protocols (sea salt, licorice root, etc) that may be more effective or have less side effects? Also, is a potassium supplement necessary with licorice root, etc. or is that just a Florinef thing...
Note- An admittedly lousy cardiologist I saw discouraged the use of Florinef because of the risks of side effects for someone in my condition, and prescribed Theophylline instead (vasoconstrictor), but the latter had too many side effects of its own and I had to discontinue it. Midodrine was also considered too risky by both docs due to my weakened condition, to the fact that the OH is technically on the "mild side", and to the apparently high reactivity of my autonomic system these days (even small doses of Theophylline caused temporary hypertension, while not preventing drops on standing!)
Thanks,
-K
My doctor (a rheumy) just prescribed Florinef for neurally mediated orthostatic hypotension (and related problems -- not POTS, to my knowledge). It's fairly mild OH, with a 10-15 mm Hg drop on standing (not always immediately), but whether due to that or to other dysautonomias (TTT positive after nitroglycerin challenge, possible vasovagal syncope) I have a lot of problems with dizziness standing, often even sitting, and can't remain standing long or walk for any reasonable distance..(deconditioning no doubt contributes, as I am virtually bedridden).
Anyway, I didn't have the sense to research it before agreeing to give it a try; now having looked into what others on this site and elsewhere (incl. Cheney) have said about it I'm not sure whether to still give it a try...
Has anyone else (esp. those who haven't yet posted on it) tried it? And has anyone had success treating OH (esp. without POTS) with other natural protocols (sea salt, licorice root, etc) that may be more effective or have less side effects? Also, is a potassium supplement necessary with licorice root, etc. or is that just a Florinef thing...
Note- An admittedly lousy cardiologist I saw discouraged the use of Florinef because of the risks of side effects for someone in my condition, and prescribed Theophylline instead (vasoconstrictor), but the latter had too many side effects of its own and I had to discontinue it. Midodrine was also considered too risky by both docs due to my weakened condition, to the fact that the OH is technically on the "mild side", and to the apparently high reactivity of my autonomic system these days (even small doses of Theophylline caused temporary hypertension, while not preventing drops on standing!)
Thanks,
-K