BadBadBear
Senior Member
- Messages
- 571
- Location
- Rocky Mountains
Hi,
I am at the start of my diagnosis journey, I have been mildly symptomatic for at least two decades with a sharp decline in my functioning about 6 months ago. I crashed hard in Oct.
I finally got into a cardiologist, and was put on .2mg Florinef about 2.5 weeks ago for OI. I asked him if I needed any bloodwork, and he said no. I have been salt loading, and if anything, cutting my water back. I am always thirsty, and am trying to keep my water consumption to ~1 gallon per day, left to my own my water consumption is 2+ gallon per day.
Well, I have been feeling not very good this week so I decided to get my own bloodwork done. Results show that my potassium has dropped from 4.1 before any treatment to 3.7 now.
Interestingly to me, my sodium was at 141 in Feb., which was before I went on Florinef, and today it's still exactly at 141. Yesterday I consumed 11+ grams of salt and around 150+ fluid ounces of water. My BUN/Creatinine ratio is a little better, it was at 16.1 and now is at 15.2 (still high).
Does this mean that Florinef + salt loading isn't doing anything, other than trashing my potassium level? If so, I'd love to drop the Florinef. It gives me a headache. I'm still having low blood pressure. The only thing that MIGHT be a tad better is my pre-syncope symptoms. It's hard to tell, though, because I am very careful about not standing up rapidly.
I did pick up some potassium gluconate, and I sent lab results to my cardiologist and my primary doc. Kind of doubt they'll notice...
Thanks for any insight about the sodium blood levels!
- Michelle
I am at the start of my diagnosis journey, I have been mildly symptomatic for at least two decades with a sharp decline in my functioning about 6 months ago. I crashed hard in Oct.
I finally got into a cardiologist, and was put on .2mg Florinef about 2.5 weeks ago for OI. I asked him if I needed any bloodwork, and he said no. I have been salt loading, and if anything, cutting my water back. I am always thirsty, and am trying to keep my water consumption to ~1 gallon per day, left to my own my water consumption is 2+ gallon per day.
Well, I have been feeling not very good this week so I decided to get my own bloodwork done. Results show that my potassium has dropped from 4.1 before any treatment to 3.7 now.
Interestingly to me, my sodium was at 141 in Feb., which was before I went on Florinef, and today it's still exactly at 141. Yesterday I consumed 11+ grams of salt and around 150+ fluid ounces of water. My BUN/Creatinine ratio is a little better, it was at 16.1 and now is at 15.2 (still high).
Does this mean that Florinef + salt loading isn't doing anything, other than trashing my potassium level? If so, I'd love to drop the Florinef. It gives me a headache. I'm still having low blood pressure. The only thing that MIGHT be a tad better is my pre-syncope symptoms. It's hard to tell, though, because I am very careful about not standing up rapidly.
I did pick up some potassium gluconate, and I sent lab results to my cardiologist and my primary doc. Kind of doubt they'll notice...
Thanks for any insight about the sodium blood levels!
- Michelle