- Messages
- 23
- Location
- D/FW TX
I tried searching for info, but I'm having a terrible day, and it was just overwhelming trying to *find* anything... so I apologize if this has been asked and answered elsewhere.
I have been diagnosed with Fibro/CFS by my VA doctor.
Before my diagnosis I got lots of testing and a reasonable level of interest. After the diagnosis, the "care" attitude has been so appalling that I won't even write it out in detail, because it upsets me that much. In summary, they're condescending, accusatory, and victim-blaming, and they never, ever seem to listen.
On the one hand, I know that I really need to find an interested and informed doctor who will actually work WITH me.
On the other hand, I'm *terrified* of going through more, and possibly worse, of this medical-mental-abuse.
Due to having several pre-existing conditions, I'm effectively uninsurable, so we'd be paying out of pocket for me to see anyone outside the VA. That just enhances the fear of screwing up and going to a "bad doctor". I can't *afford* it.
The closer to the Richardson, TX area, the better, because driving is really rough. Getting TO an appointment is seldom a problem, but getting BACK after being put through the wringer, and being all amped-up from my anxiety can be a real problem.
I really, really, REALLY need a doc who is either nurturing and empathetic (ideal) or at least clinical and objective without any overt emotional demeanor at all - at least that won't scare me, even if it's not exactly uplifting ;-p
I can. not. handle. a meanie, or a "toughlove" type or a dismissive attitude. At all.
Since no treatment works for all fibro sufferers, but LOTS of treatments do work for SOME fibro sufferers, I'd really like to find a doc who will work with me on trying different things to see what works for ME. Even if it's not his/her preferred mode of treatment. And who, even if nothing does work, will not blame ME for failure-to-respond, but will persist in helping me continue to explore.
Bonus points for having a small, comfortable office, with minimal chemical-exposures and sensory-overload-tendencies, but I won't rule someone out just because their office sucks.
Any recommendations?
I have been diagnosed with Fibro/CFS by my VA doctor.
Before my diagnosis I got lots of testing and a reasonable level of interest. After the diagnosis, the "care" attitude has been so appalling that I won't even write it out in detail, because it upsets me that much. In summary, they're condescending, accusatory, and victim-blaming, and they never, ever seem to listen.
On the one hand, I know that I really need to find an interested and informed doctor who will actually work WITH me.
On the other hand, I'm *terrified* of going through more, and possibly worse, of this medical-mental-abuse.
Due to having several pre-existing conditions, I'm effectively uninsurable, so we'd be paying out of pocket for me to see anyone outside the VA. That just enhances the fear of screwing up and going to a "bad doctor". I can't *afford* it.
The closer to the Richardson, TX area, the better, because driving is really rough. Getting TO an appointment is seldom a problem, but getting BACK after being put through the wringer, and being all amped-up from my anxiety can be a real problem.
I really, really, REALLY need a doc who is either nurturing and empathetic (ideal) or at least clinical and objective without any overt emotional demeanor at all - at least that won't scare me, even if it's not exactly uplifting ;-p
I can. not. handle. a meanie, or a "toughlove" type or a dismissive attitude. At all.
Since no treatment works for all fibro sufferers, but LOTS of treatments do work for SOME fibro sufferers, I'd really like to find a doc who will work with me on trying different things to see what works for ME. Even if it's not his/her preferred mode of treatment. And who, even if nothing does work, will not blame ME for failure-to-respond, but will persist in helping me continue to explore.
Bonus points for having a small, comfortable office, with minimal chemical-exposures and sensory-overload-tendencies, but I won't rule someone out just because their office sucks.
Any recommendations?