halcyon
Senior Member
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Good catch, I didn't even look closely at the article or its references. I'll edit the page.A quick look at the reference for that paragraph reveals that it does not mention fatigue nor CFS at all:
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Good catch, I didn't even look closely at the article or its references. I'll edit the page.A quick look at the reference for that paragraph reveals that it does not mention fatigue nor CFS at all:
I see they’re at it again today, “linking” smoking to schizophrenia and psychosis. It’s another of their beloved Systematic Review and Meta-Analysis jobs.
To be clear, this is about psychologists not psychiatrists, and the APA is the other APA for psychologists.Outside Psychologists Shielded U.S. Torture Program, Report Finds.
Saturday headline in NY Times, says it all, psychs are still involved with torture now but it is ME patients who are suffering.
I read this study too (it's from 2003), but I wasn't sure what they really meant by:The hypothesis was tested and was found to be flawed:
"Chronic Fatigue Syndrome: Lack of Association Between Pain-Related Fear of Movement and Exercise Capacity and Disability"
http://ptjournal.apta.org/content/84/8/696.short
To me this sounds like they're saying: 'there is no reason to fear exertion, because you are certainly capable of exerting yourself.' Or am I missing something?Conclusion. These results indicate a lack of correlation between kinesiophobia and exercise capacity, activity limitations, or participation restrictions, at least in patients with CFS who are experiencing widespread muscle or joint pain.
A lack of correlation means that there is no connection: fear does not result in disability.To me this sounds like they're saying: 'there is no reason to fear exertion, because you are certainly capable of exerting yourself.' Or am I missing something?
I know what correlation means (duh). They say there is no connection between fear of exercise and exercise CAPACITY. So we are afraid of exercise, although our capacity to exercise is fine, aka we are afraid of nothing. That is how I understood this very old study.A lack of correlation means that there is no connection: fear does not result in disability.
If there wasn't disability, they would say there wasn't disability. Saying that there was no connection between the two factors implies that each factor exists. I'm not sure where you're getting your interpretation from.I know what correlation means (duh). They say there is no connection between fear of exercise and exercise CAPACITY. So we are afraid of exercise, although our capacity to exercise is fine, aka we are afraid of nothing. That is how I understood this very old study.
This doesn't make any whatsoever as ME/CFS patients learn to reduce activity by exposing themselves to it.
Have you tried using a heart rate monitor as a guide to pacing and/or exercising?The problem is I don't know when to draw the line.
Yep. But it doesn't help. When I'm not good (or medicated my heart rate just stays low and I feel feint. It's really obvious even without the heart rate monitorHave you tried using a heart rate monitor as a guide to pacing and/or exercising?