FDA Teleconference Promises Hope for ME/CFS

[Cort]

FDA Teleconference Promising for ME/CFS Community - the FDA teleconference was good news for the ME/CFS Community with FDA Deputy Director Kweder stating the FDA puts ME/CFS in the same category as cancer, diabetes, epilepsy and other 'serious and life-threatening disorders.

Check out more here..http://me-cfscommunity.com/profiles/blogs/fda-teleconference-call-promises-hope-for-me-cfs

 

[Sasha]

Hi Cort - clicking on the link takes me to a sign-in page for that website. Personally, I'm not keen on sites that make cognitively challenged PWME jump through admin hoops to see useful info, as opposed to sensitive discussion - just wondering if there is another source for this info. No big deal if not, though.

 

[snowathlete]

Great if they actually do treat it in the same way. Let's hope the words translate into finance on the same level as cancer, diabetes etc.

 

[K2 for Hope]

Yes, here's the FDA website for:

FDA: Drug Development for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS)

http://www.fda.gov/Drugs/NewsEvents/ucm319188.htm

Check out the (almost last) bullet:
Response Letter to Questions and E-mails Regarding Teleconference Invitation (PDF - 22KB)
Interesting.,...

 

[K2 for Hope]

Curious to what you all think.

They are supposed to have a transcribed version of the actual meeting. Not sure when that will get posted. They said a week later... Should get posted to the same site...

I'll be out of town for a couple weeks, but am curious what it will say...