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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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OK, so presumably not today's edition - who had Tues., August 17 in the pool??
PNAS press embargoes lift on Monday, 3 PM Eastern time. So unless they're really doing some special procedure for this story, one presumes the headlines will appear on Monday and the actual paper Tuesday...? (of whatever week it turns out to be)
There will be no study that says "the WPI study published in Oct. 2009 Science is replicated/reproduced by this new study and they were actually right about a XMRV/CFS connection" Trust me on this.
(snipped) Levi was going with Never, as I recall.
Here is the relevant quote:
Lets wait and see what gets published . . .
News of the study finally being in press is most certainly worthy of celebration. But, I'm reserving the real party for the actual publication. The paper will surely be published (YAAAAA), but the question remains as to what kind of modifications they have done to the original paper. These people have very publicly demonstrated repeatedly that they are not to be trusted. So, this is awesome news that we are in the homestretch finally.....I just want to know for sure that the Finnish line hasn't been moved.
Thank you Mindy for keeping us in breaking news loop
I expect this statement, or any semblance of it, to be disappeared. Literal or not. As far as the data presented, I honestly do not know what to expect. But you may have bragging rights and I will officially eat my words if the data presented by the Lo/Alter paper meaningfully contradict the latest CDC XMRV "research" paper."Although blood transmission to humans has not been proved, it is probable. The association with CFS is very strong, but causality not proved. XMRV and related MLVs are in the donor supply with an early prevalence estimate of 3%‐7%. We (FDA & NIH) have independently confirmed the Lombardi group findings."
Okay, sounds good except for one question -- You don't mean those literal words, right? I'm expecting the paper to be a validation paper of the WPI study in Science and that it therefore confirms the XMRV/CFS connection. I don't need them to have used exactly the same methodology as WPI for this paper to be a validation paper. Are you in agreement on that?
As far as I'm concerned, if the paper comes out and doesn't also show XMRV in a majority of the ME/CFS patients tested, than it's not the paper. Even if it comes out on Aug 31, if it doesn't show XMRV in a majority of the ME/CFS patients, then I don't win bragging rights. Deal?