FDA/NIH PAPER IN LIMBO; PATIENTS UNITE, by Mindy Kitei

boomer

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There are other costs to the patient to. A person I know with cfs has a massage every week and sees an osteopath every week and also sees a physiotherapist every couple of weeks on an ongoing basis. This is not a luxury either - it's a necessity to deal with the pain and the tightened muscles. She sees a doctor almost every week over something- ear infections, yeast, headaches, sleep, depression, pain, etc. I swear we must have seen every type of doctor there is to try to figure out what is wrong. The costs to the patient are big.

i remember when I was growing up - you almost never heard of people having massages. Nowadays, they are everywhere and I wonder if the growing number of people with cfs and fibro have contributed to the demands.
 
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Those numbers seem to make sense. They might be a little conservative. Or not. You can see that since our GDP is $13T, if 0.5% of the population were totally disabled by ME the loss is $65B per annum. But maybe a good deal fewer people than that are totally disabled.