FDA and NIH confirm WPI XMRV findings (report of leaked presentation)

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VillageLife

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Red Cross Evaluates Possible Effect Of Retrovirus XMRV And CFS On Blood Supply

http://www.empowher.com/wellness/co...e-effect-retrovirus-xmrv-and-cfs-blood-supply

Dr. Roger Dodd of the American Red Cross spoke recently at the Zagreb Conference about possible effects of the retrovirus XMRV and Chronic Fatigue Syndrome (CFS) on the blood supply.

Dr. Dodd laid out a number of possible scenarios. The retrovirus XMRV may be irrelevant to the safety of the blood supply in which case people with Chronic Fatigue Syndrome can donate blood.

The other end of the spectrum is a very serious scenario indeed. In this scenario the blood supply may well be contaminated already by a potentially dangerous retrovirus.

Dr. Dodd said that the Red Cross needs more information, not least of which would be a reliable test for detecting XMRV and rates of infection in the blood donor population.

"He also provided a list of infections that are putatively associated with CFS. What was impressive about Dr. Dodd’s list was it’s size; it contained enteroviruses, Epstein-Barr virus, cytomegalovirus, HHV-6 and 7, B-19 parvovirus, hepatitis C virus, HTLV (DeFrietas), spumavirus, Chlamydia pneumoniae, Coxiella Burnetti, Brucella and Toxoplasma."
 
S

Sasha

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I see the story is now covered on a New Scientist blog (but I'm still confused about whether Dr Alter is referring to his own research or WPI's!). There's a powerful comment by a very ill PWC.
 
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judderwocky

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Sasha said:
My question was really whose finding about the strong association and causality likely but not proven Dr Alter was talking about - the WPI's original finding (of a strong association that nevertheless didn't prove causality but made it look likely) or new research by Alter's group. The wording (from Dr Alter's slide) seems ambiguous to me in that respect - of course, to anyone in the audience it would have been clear! The new figures about prevalence in the blood supply seem to make it clear that that research at least is Alter's. But the CFS/XMRV link? Anybody?
Click to expand...


... i just didn't see it that way... to me it seems that they are supporting the Lombardi et all conclusions listed in the paper as a whole.
 
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bullybeef

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A question about EBV, I have recently had three EBV blood tests:

An EBV serology test - neg
A mono test - neg

And another serology EBV test, which is apparently different from the others and the surgery nurse had to physically write my name on the vial because she couldn't print a label. It was mysteriously referred to a city hospital, and four weeks later (should have been two) I am positive for another type of EBV!! I have never had EBV as far as I know.

Any ideas anyone?
 
Mark

Mark

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Nice to see New Scientist have finally cottoned on, thanks for pipping me to that post Sunday. :D Perhaps this will be seen as solid enough for it to make a paper or two tomorrow. Kudos for the first UK major to take the plunge...

http://www.newscientist.com/blogs/shortsharpscience/2010/06/chronic-fatigue-syndrome-blame.html

They ain't got much new or much science in their report though - looks like we're one of their main sources. :cool:

Go tell 'em whatever you feel they need to know... :D
 
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Judy Frederiksen

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It's just got to have a big "Mick Jagger" like mouth blowing a raspberry...
 
Mark

Mark

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Thoughts like that sink home...

Stick this one in the soundtrack guys...

[video=youtube;-gReglJP6XA]http://www.youtube.com/watch?v=-gReglJP6XA[/video]

The Housemartins: "Untouchable Greatness"
 
Otis

Otis

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Sasha said:
My question was really whose finding about the strong association and causality likely but not proven Dr Alter was talking about - the WPI's original finding (of a strong association that nevertheless didn't prove causality but made it look likely) or new research by Alter's group. The wording (from Dr Alter's slide) seems ambiguous to me in that respect - of course, to anyone in the audience it would have been clear! The new figures about prevalence in the blood supply seem to make it clear that that research at least is Alter's. But the CFS/XMRV link? Anybody?
Click to expand...

Sasha,

A link was posted earlier to Hillary Johnson's blog that provided independent confirmation of the study and an emphasis that the CFS positive rate may be "significantly higher" in this study than the Science paper (67%). This pretty well iced it for me.

Here you go: http://oslersweb.com/

Otis
 
V

VillageLife

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Does anyone think that when the FDA & NIH get this paper published, that the UK media will basically say sadly No XMRV has been found here in studies and so its likely there is geographical differences!
 
glenp

glenp

"and this too shall pass"
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TY Mark

Ty Mark
Mark said:
Nice to see New Scientist have finally cottoned on, thanks for pipping me to that post Sunday. :D Perhaps this will be seen as solid enough for it to make a paper or two tomorrow. Kudos for the first UK major to take the plunge...

http://www.newscientist.com/blogs/shortsharpscience/2010/06/chronic-fatigue-syndrome-blame.html

They ain't got much new or much science in their report though - looks like we're one of their main sources. :cool:

Go tell 'em whatever you feel they need to know... :D
Click to expand...


TY Mark --I posted my comment
 
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judderwocky

Senior Member
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328
i seem to recall that some american groups are also testing in the UK... i forgot where i read that... but basically the germans tried that and now we know its in their region. people are going to get the picture soon.
 
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thegodofpleasure

Player in a Greek Tragedy
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WPI have changed their minds about posting this on their website

Has anyone else noticed that the WPI have removed the reference on their homepage (and news page) to the dutch news report?
It was there a few hours ago - now they're not ! :confused:

I've said it before and will say it again - WPI desperately need to get someone in to take a firm grip of their PR.

TGOP :(
 
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judderwocky

Senior Member
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328
they might just be waiting for the published version to come out... i read somewhere the other day that its in press
 
A

Alexia

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villagelife said:
Does anyone think that when the FDA & NIH get this paper published, that the UK media will basically say sadly No XMRV has been found here in studies and so its likely there is geographical differences!
Click to expand...

Don't forget that Redlabs in Belgium will start soon testing for XMRV and some of Dr. de Meileir patients are already being tested or will be very soon. It will be easier for people from UK to be tested in Belgium.
 
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