soxfan
Senior Member
- Messages
- 995
- Location
- North Carolina
It’s been a while since I have posted. It’s not that I am better but have been managing the best I can. I took up nature photography because it helped with the stress of having this illness. I enjoy it and gets me out in nature which is calming.
Most mornings I still wake somewhat unrefreshed but am able to mange most days. I can sometimes even do errands on my own.
I was also recently diagnosed through biopsy with Small Fiber Neuropathy in my calves and feet. The fiber density is basically non existent. The pain at night is intense .
So anyway just recently I have been waking up totally exhausted like I have jet lag or within a couple hours the fatigue/tiredness becomes unbearable and I have to rest in I mean lay on bed for hours. This is pretty devastating since I haven’t felt this bad about two years. I still take the same meds half milligram Klonopin so I can fall asleep. It does keep me asleep all night even with the pain. I use lidocaine patches.
How do you keep your spirits up when suddenly going backwards? I also just had a huge rash on my back so am seeing my Lyme doctor next week. I am going to try and post a photo of it …believe me when I say I did not do this to myself…it is not self inflicted. There are actual welts under the streaks.
I still have no real diagnosis because the doctors say I am a mystery. If anyone has ever seen a rash like this please do you have any idea about it. Thanks
Most mornings I still wake somewhat unrefreshed but am able to mange most days. I can sometimes even do errands on my own.
I was also recently diagnosed through biopsy with Small Fiber Neuropathy in my calves and feet. The fiber density is basically non existent. The pain at night is intense .
So anyway just recently I have been waking up totally exhausted like I have jet lag or within a couple hours the fatigue/tiredness becomes unbearable and I have to rest in I mean lay on bed for hours. This is pretty devastating since I haven’t felt this bad about two years. I still take the same meds half milligram Klonopin so I can fall asleep. It does keep me asleep all night even with the pain. I use lidocaine patches.
How do you keep your spirits up when suddenly going backwards? I also just had a huge rash on my back so am seeing my Lyme doctor next week. I am going to try and post a photo of it …believe me when I say I did not do this to myself…it is not self inflicted. There are actual welts under the streaks.
I still have no real diagnosis because the doctors say I am a mystery. If anyone has ever seen a rash like this please do you have any idea about it. Thanks