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I've received compassionate, intelligent, and responsible care for my ME/CFS symptoms from Dr. Jon Kaiser.
https://www.jonkaiser.com/
He is an integrative medicine specialist with expertise treating patients with fatigue diseases including ME/CFS, Fibromyalgia, immune system disorders, GI issues, etc. He has a long history of treating AIDS/HIV patients and created some very important supplements under the brand KPAX. I believe he's still affiliated with UC San Francisco, and UCSF is one of the best med schools in the country. Just as importantly, he himself has had ME/CFS and went through his own journey, so he gets what a patient is going through. I value empathy in my doctors immensely, and he has plenty. He's also efficient, so he keeps me on track in sessions.
In the last 5 months or so he's ordered a whole lot of blood work and reviewed it with me, ordered a parasite stool sample test to evaluate gut health, advised on my diet changes, guided me on supplements, and most recently we got a mycotoxin test done, which took some maneuvering since I'm in NY and only one lab--Real Time--is able to do this test for patients based in NY (due to FDA restrictions).
Long story short, we've uncovered the contributing factors to my ME/CFS symptoms and they are #1 mold toxicity (my scores are through the roof, it's a bit scary) and extreme stress from the workplace, which triggered my ME/CFS symptoms. While we're not saying there could be other factors at play--I have a complex bill of health--these are the focal points for me.
Dr. Kaiser comes with a cost and I don't think he accepts insurance but I would recommend him, even if just for a few sessions to get on a path and to check in every now and then. I know most of us are going our own way but I wanted to share my experience.
He's based in CA but treats via video/tele sessions.
(This is coming from me, a patient. I'm not incentivized in any way to post this).
Is there an area of this site to add Dr. Kaiser to the list of fatigue specialists? I'm not sure if he's listed already.
https://www.jonkaiser.com/
He is an integrative medicine specialist with expertise treating patients with fatigue diseases including ME/CFS, Fibromyalgia, immune system disorders, GI issues, etc. He has a long history of treating AIDS/HIV patients and created some very important supplements under the brand KPAX. I believe he's still affiliated with UC San Francisco, and UCSF is one of the best med schools in the country. Just as importantly, he himself has had ME/CFS and went through his own journey, so he gets what a patient is going through. I value empathy in my doctors immensely, and he has plenty. He's also efficient, so he keeps me on track in sessions.
In the last 5 months or so he's ordered a whole lot of blood work and reviewed it with me, ordered a parasite stool sample test to evaluate gut health, advised on my diet changes, guided me on supplements, and most recently we got a mycotoxin test done, which took some maneuvering since I'm in NY and only one lab--Real Time--is able to do this test for patients based in NY (due to FDA restrictions).
Long story short, we've uncovered the contributing factors to my ME/CFS symptoms and they are #1 mold toxicity (my scores are through the roof, it's a bit scary) and extreme stress from the workplace, which triggered my ME/CFS symptoms. While we're not saying there could be other factors at play--I have a complex bill of health--these are the focal points for me.
Dr. Kaiser comes with a cost and I don't think he accepts insurance but I would recommend him, even if just for a few sessions to get on a path and to check in every now and then. I know most of us are going our own way but I wanted to share my experience.
He's based in CA but treats via video/tele sessions.
(This is coming from me, a patient. I'm not incentivized in any way to post this).
Is there an area of this site to add Dr. Kaiser to the list of fatigue specialists? I'm not sure if he's listed already.
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