Hello I was hoping you were much better by now. Have you been able to stop treatment and be fully cured?
Fully cured? Dam close. But i continue to take famvir. Famvir has helped alot but equally as helpful has been trt/hrt, testosterone replacement therapy. Besides its effects on increasing general recovery from activity etc, it also has a big impact on improving immune function, myself ive noticed an increase in neutrophil counts which have been low for a number of years and now within normal range.
My thoughts are that the antivirals target the infection directly that trouble me and the trt indirectly helps through improving immune function. I will say that trt has helped alot with arthritic joint pain and made a big difference with lower back issue that i have had for years . I am considering later in the year stopping famvir and see how i go. Trt is a for life treatment generally, once you have started.
I dont need lyrica anymore for pain and half cut my tramadol use in half.Tramadol was mostly for joint and back pain. One of my next moves will be to look at stopping sleep meds. I am sleeping better but still medicated sleep.
I was using ARVS and i think it helped but im not sure it helped outside of just reducing inflammation. Generally i found any positive effects stopped with time so a break was needed and id restart the arvs again with some improvement. I think the body/immune system just got use to the arvs anti inflammatory effects and would up regulate inflammation which is why breaks were needed.
Im not convinced cfs is a retrovirus. I think cfs can have common viruses continue to infect cfsers long term. Those infection can effect the hypothalamus which can be a cause of many symptoms. The hypothalamus controls many hormones, immune system/inflammation and other functions like sleep. Fixing the hormone abnormalities or sometimes hormone replacement is needed with treating infections one may have, is what i have found helpful for me.
