False Allegations of Child Abuse in Cases of Childhood Myalgic Encephalomyelitis (ME) by Jane Colby

[Leopardtail]

I was in touch with someone who went there who was distraught that they reclassified her while there with MUPS (Medically Unexplained Physical Symptoms), so am interested to hear that change in diagnosis is routine.

She was v worried that it would affect her benefits applications. She was desperate to get out of the place after a few weeks, but decided to get them to believe that she would continue with their advice/treatment at home.

I immediately went to Dr Wood (cost circa £150) rather than lose my income and got re-diagnosed.

 

[MeSci]

I was in touch with someone who went there who was distraught that they reclassified her while there with MUPS (Medically Unexplained Physical Symptoms), so am interested to hear that change in diagnosis is routine.

She was v worried that it would affect her benefits applications. She was desperate to get out of the place after a few weeks, but decided to get them to believe that she would continue with their advice/treatment at home.

It's terrible when a patient has to resort to being 'economical with the truth' instead of honest with someone on whom they are forced to be partially dependent for their health. But I know the feeling all too well. I know that it's just too risky to be completely honest with doctors, and pharmacists, as they might then refuse to provide what I need from them. It goes completely against my natural inclination to be honest and makes me very uncomfortable.

 

[Leopardtail]

It's terrible when a patient has to resort to being 'economical with the truth' instead of honest with someone on whom they are forced to be partially dependent for their health. But I know the feeling all too well. I know that it's just too risky to be completely honest with doctors, and pharmacists, as they might then refuse to provide what I need from them. It goes completely against my natural inclination to be honest and makes me very uncomfortable.

I agree completely with this. Also for those of whose who suffer co-morbidities, it also denies us access to the advice (e.g. of the pharmacist) regarding any interaction with the co-morbid illness or our other medications.

 

[MeSci]

I agree completely with this. Also for those of whose who suffer co-morbidities, it also denies us access to the advice (e.g. of the pharmacist) regarding any interaction with the co-morbid illness or our other medications.

Not sure that I would trust my pharmacist's advice. He recently asked, when doing one of his unnecessary and unsolicited reviews on my prescription meds, whether I was taking desmopressin to build muscle. I am not aware of it ever being used to do this, or any ability of the drug to do it.

Interactions, contraindications, etc. can easily be looked up on sites such as drugs.com and many other authoritative ones.

I certainly wouldn't trust any advice from a pharmacy assistant. One said to me that I had to be careful with an OTC med if I had hypertension. I asked her if she was sure (as I had read that it actually had a risk of causing hypotension). She asserted that she was. Checked this on arriving home, and I was right and she was wrong. I wonder how many people have suffered dangerous hypotension as a result of her advice.

All I want from the pharmacist is to sell me what I ask for.

 

[golden]

I actually prefer the pharmacists to be this way (not that i ever use them).

My Mother was a random pharmacy pill popper and this change marks the end if an era. The new method infuriated her.

But they often flagged up correctly problems.

When they were a bit of a nuisance was when I had to forfil the morphine prescriptions for my Mother for her Cancer.

And the ambience they created was unpleasant. Constantly re-checking with the G.P. Even though by that time I was a regular and gad been given notes to OK it.

Now the NHS was killing off my Mother so who knows, maybe they were right.

When she died, on Christmas Day, I wanted the Nurses to take away the carrier bag full of crap (morphine/medicines)... Wanted it gone. But they would not. Helpful Nurses as ever.

I ended up having to take it back to the pharmacy. And they looked suprised. So I gather where there mindset is.

 

[Leopardtail]

Not sure that I would trust my pharmacist's advice. He recently asked, when doing one of his unnecessary and unsolicited reviews on my prescription meds, whether I was taking desmopressin to build muscle. I am not aware of it ever being used to do this, or any ability of the drug to do it.

Interactions, contraindications, etc. can easily be looked up on sites such as drugs.com and many other authoritative ones.

I certainly wouldn't trust any advice from a pharmacy assistant. One said to me that I had to be careful with an OTC med if I had hypertension. I asked her if she was sure (as I had read that it actually had a risk of causing hypotension). She asserted that she was. Checked this on arriving home, and I was right and she was wrong. I wonder how many people have suffered dangerous hypotension as a result of her advice.

All I want from the pharmacist is to sell me what I ask for.

I was referring to the actual pharmacist... !!!

 

[MeSci]

I was referring to the actual pharmacist... !!!

So was I, in the first part of my message.

 

[Leopardtail]

So was I, in the first part of my message.

Mine never tries to interfere with prescription medications thank God. I do have a 'Doctor Dangerous' at my GP surgery who thinks how knows more than the consultant diabetic specialist who manages me medically.

My pharmacist is quite good at looking up side effects, conraindications and whether things can be prescribed if ask nicely. Though I do usually have to put up with an arrogant lecture fist.