Experiences with lumbar puncture and epidural blood patches

[judyinthesky]

Hey everybody.

I am interested in your experience of spinal tap and epidural blood patching. Particularly from the experience of ME/CFS people.

How you crashed.
I've had a crash already with the lumbar puncture and got very bad after it.

I am now collecting experiences of epidural blood patching. It would also be great if you had one, if you could describe your experience of it in relation to the lumbar puncture!

How it did compare, how it did feel. Thank you!

 

[YippeeKi YOW !!]

Hi @judyinthesky .....

I'm back. I'll be popping in from time to time to post something here, just to bump this thread in case responses come in slowly, and just to say hi, and cheer you on .

Excellent title. Specific, clean, short. And I think a new thread was the way to go ....

 

[YippeeKi YOW !!]

Hiya, @judyinthesky ...

And back again. Bumpity bump ....

Be patient ... responses will flow in slowly on a tightly defined topic like this one, but the ones that do roll in will be specific and helpful.

 

[Thebirdman333]

Fyi I made a post about this recently and a pretty solid poll if you want to take a peak.

 

[YippeeKi YOW !!]

Fyi I made a post about this recently and a pretty solid poll if you want to take a peak.

Excellent !!!

Maybe post a link?

 

[Thebirdman333]

Excellent !!!

Maybe post a link?

https://forums.phoenixrising.me/thr...-puncture-spinal-tap-done.86493/#post-2382508

 

[YippeeKi YOW !!]

Thanks for posting the link @Thebirdman333 ....

I dont do Google polls, and I don't think I'm alone in that reluctance, so if you're not getting a lot of responses, you might consider reposting an internal PR poll, which I know is generally responded to more fully by members here ...

Either way, best of luck with the lumbar puncture. I had one prior to spinal surgery some years ago, and it was awful !!! Like you, HUUUUUUGE headache, uncontrollable vomiting for hours afterwards, and then whisked into a long surgery, which thankfully, I was heavily anesthetized for .... and yes, it WAS done at a teaching hospital, a highly respected one, but a teaching hospital nonetheless, so I'm hoping that this second one will be a lot easier for you ....