Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My bed is in a corner. I lie down on my bed, w/ a book. Maybe I read, maybe I drift. Everything about life is exhausting, including watching people, eg in films, doing normal things. I find that the essence of mindfulness, being in this moment, rather than the past or future, relieves the feelings of desperation. I've had to work at building a *spiritual* scaffolding, a way of looking at the world, that brings me back from the brink of wanting escape. Music helps. Joy becomes something different from what it was when I was well.
Not hard to understand that nothingness.I would be interested to know how you built the spiritual scaffolding. I find being in the moment nothingness right now - maybe it's the exhaustion but I lay and try and listen or look about the room and there is just a nothingness - it's hard to explain.