DanME
Senior Member
- Messages
- 289
Hi folks,
good news!
A new European research network for ME/CFS called EUROMENE has been approved by the European Cooperation In Science And Technology (COST), in layman terms, COST is going to fund professional collaboration between different research teams throughout Europe.
"The main aim and objective of the Action ist to create a sustainable integrated network of researchers in Europe working in the field of ME/CFS. Action will provide clear benefits via coordination of research activities, support to development of common standards, database synchronisation, and promotion of new research projects in the area. Data depositories harmonisation and data collection protocol synchronisation can greatly improve use of existing data, including Open data sources, and allow the development of coherent research strategies."
Here is the link. You can also download their Memorandum of Understanding, which sounds very promising. As far as I know, more research teams will join soon.
http://www.cost.eu/COST_Actions/ca/CA15111
The Memorandum is copy protected, but here are some of their objectives:
- develop strategies to collect population-based data on the prevalence of ME/CFS, including pilot studies in selected locations
- explore the potential of existing cohorts
- promote co-operation and involvement of research groups with an objective to assess potential biomarkers for ME/CFS
- define a standardized clinical diagnosis for ME/CFS for clinicians and researchers
- foster development of prevention and treatment guidelines
- coordinate efforts to determine the social impact of ME/CFS
- establish communication links with industrial organizations (pharmaceutical, biotechnology and ICT industries) in each participating country
- demonstrate ME/CFS as a promising field for carrier development in science
- foster knowledge exchange on use of synchronized diagnostic criteria and management of research in ME/CFS
- review existing facilities for the storage of tissue samples
and many more...
Members so far:
Bulgaria Prof Evelina SHIKOVA-LEKOVA
Germany Prof Carmen SCHEIBENBOGEN
Latvia Dr Uldis BERKIS
Latvia Prof Modra MUROVSKA
United Kingdom Dr Eliana LACERDA
PS: I just found out, that COST has more members than the EU (like Island, Isreal & Norway) and is only co funded by the EU...
good news!
A new European research network for ME/CFS called EUROMENE has been approved by the European Cooperation In Science And Technology (COST), in layman terms, COST is going to fund professional collaboration between different research teams throughout Europe.
"The main aim and objective of the Action ist to create a sustainable integrated network of researchers in Europe working in the field of ME/CFS. Action will provide clear benefits via coordination of research activities, support to development of common standards, database synchronisation, and promotion of new research projects in the area. Data depositories harmonisation and data collection protocol synchronisation can greatly improve use of existing data, including Open data sources, and allow the development of coherent research strategies."
Here is the link. You can also download their Memorandum of Understanding, which sounds very promising. As far as I know, more research teams will join soon.
http://www.cost.eu/COST_Actions/ca/CA15111
The Memorandum is copy protected, but here are some of their objectives:
- develop strategies to collect population-based data on the prevalence of ME/CFS, including pilot studies in selected locations
- explore the potential of existing cohorts
- promote co-operation and involvement of research groups with an objective to assess potential biomarkers for ME/CFS
- define a standardized clinical diagnosis for ME/CFS for clinicians and researchers
- foster development of prevention and treatment guidelines
- coordinate efforts to determine the social impact of ME/CFS
- establish communication links with industrial organizations (pharmaceutical, biotechnology and ICT industries) in each participating country
- demonstrate ME/CFS as a promising field for carrier development in science
- foster knowledge exchange on use of synchronized diagnostic criteria and management of research in ME/CFS
- review existing facilities for the storage of tissue samples
and many more...
Members so far:
Bulgaria Prof Evelina SHIKOVA-LEKOVA
Germany Prof Carmen SCHEIBENBOGEN
Latvia Dr Uldis BERKIS
Latvia Prof Modra MUROVSKA
United Kingdom Dr Eliana LACERDA
PS: I just found out, that COST has more members than the EU (like Island, Isreal & Norway) and is only co funded by the EU...
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