Star, they had me go up to 2 mg. I am doing awful on it. Prednisone makes me feel drugged. Like exhausted. I feel so tired on it. No one listens to me, believes me. I am made to feel crazy. "It gives you energy, it doesn't make you tired."
I can't focus at all on it. I am so tired of this. I have adverse reactions to everything. I am anxious because I am not getting the care I need. I need help and literally NO one has been there. My rheumatologist is by way of email, but I need more care than that.
No one gets it and I am sick of it.
My doctor is away and the endocrinologist says the adrenal tests are not in yet. Even if they were in and it said I had adrenal insufficiency, I can't take these medications. Plain and simple.
To Misfit Toy. I have paradoxical (opposite) reactions to many drugs a dr puts me on, and of course they don't believe me. My neurologist always yells at me when Lamictal makes me break out in hives. "no one else does"
She will never get that many people get sick from Lamictal, and I am not most people.
Although I felt "great" on Prednisone it was only 12 days. The last 4 days - I did get the wired feeling, insomnia, so much energy I was entering the mania zone. If I continued on Prednisone - I would have continued to NOT sleep - creating huge anxiety (extra epinephren in brain makes one speedy), no concentration due to a mania type phase.
This "speed" to my body uses a lot of energy due. That makes me so tired but speedy at same time.
I get you are anxious because you are not getting the care you need. I am in that state of mind, or was, until I realized that I had to do it myself since I have exhausted all my dr's help, which was zero.
I called my ENT, my Neurologist- to demand help. I realized that no one was going to help me because it is a mystery. We all get it - and we all feel your pain. No one could ever 'get this"
I really feel your pain - since March 21st I am running a fever, allergies, asthma suddenly. My internist just dropped Medicare patients as of April 1st - so after 25 years I don't have him. I am so scared just like you because we do think the worst, and unfortunately many times are correct way before a dr tells us.
You know your body the best - you have to be the first line of action right now - although it would be great if your Internist was not away. I can't tell you medical advice - but if MEDROL is source of this horrible side effects - titrate down - slowly - use a razor to cut pill into bits. Steroids and anti-depressants can't be stopped cold turkey so try to titrate just a tiny tiny bit. I don't know why you are on Medrol - so perhaps this is vital for you, but not vital when the side effects destroy your life.
I don't advocate doing anything without dr's help - but I have been in your position many times - and just researched how to get off a drug safely.
I think this past Friday taught me that there is no one doctor there for me anymore - like when I had my surrogate Dad (surgeon) helping me and my friend ENT at Hopkins one phone call away. When I had horrible things happen, they were a mere call away, and saw me next day.
Those days are over for me now- no family taking care of me. Now I am merely a nuisance.
If you had an Internist or GP - this is the time to call - but you said they are out of town? Most have backups when they go on holiday - so there is a chance to call the dr on call.
When I get desperate - I go to Urgent Care - they have 2 women who are so kind, knowledgeable, and have done more than any dr combined so far for me.
Thinking of you - most important thing is to get anxiety down - hopefully by sleeping. I have meds to help me sleep.
Starlily88
They were so great to me - the dr and nurse came in constantly, had pain meds, hydration, etc.No nurse has ever been mean to me that works at Hopkins - I think they get paid a lot, they are all very high quality - they are different from the nurses they hire at the suburban hospitals.
