Sushi
Moderation Resource Albuquerque
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This is one that keeps popping up, particularly for the dysautonomia crowd. Sorry, one more syndrome! As I understand it (I have it) it is a genetic collagen disorder, usually making tissues with collagen more stretchy. Many of the dsyautonomia crowd have mitral valve (& other valve) prolapses. This could well be from EDs (as it is affectionately known). There is usually a body type that goes with it--long limbs, slim (at least before ME/CFS), arm-span greater than height, and some other proportion things. Online resources give all the specifics.
One of the possible implications is OI. Stretchy veins, vein valves that prolapse = blood pooling when standing. Other symptoms are lots of subluxations, joints that are easily dislocated, ligaments that stretch and don't hold things in place, and an unusual degree of flexibility. The diagnosis is almost entirely done by checking a few body things having to do with flexibility, looking at body proportions, and history. Things like stretch marks at age 12 are just gravy. Boy did my GP laugh at that one! And, I am sooo good at yoga!
There are subtypes of EDs, but the one usually found in this population is called EDs III or simply hypermobility syndrome. Has anyone else explored this? I use exercise (pilates) to strengthen core muscles to compensate for ligaments being stretched, but I'd be interested if anyone has found supplements or other routes to enhance collagen.
Sushi
One of the possible implications is OI. Stretchy veins, vein valves that prolapse = blood pooling when standing. Other symptoms are lots of subluxations, joints that are easily dislocated, ligaments that stretch and don't hold things in place, and an unusual degree of flexibility. The diagnosis is almost entirely done by checking a few body things having to do with flexibility, looking at body proportions, and history. Things like stretch marks at age 12 are just gravy. Boy did my GP laugh at that one! And, I am sooo good at yoga!
There are subtypes of EDs, but the one usually found in this population is called EDs III or simply hypermobility syndrome. Has anyone else explored this? I use exercise (pilates) to strengthen core muscles to compensate for ligaments being stretched, but I'd be interested if anyone has found supplements or other routes to enhance collagen.
Sushi