How did you go about convincing a doc to give you antivirals? I’m struggling a bit with this concept of taking it all into your own hands, as people on here seem to do, I just don’t see how I could convince a doctor to listen to me. The dr already tested for a few viruses, although when I got my wife to ask if she tested for hhv6 she said no. And I don’t actually know the results, although she initially said ebv was reactivated and then later said it was long covid (even though there was no reported covid in the community). I guess we could ask for more tests. There’s not even a single specialist in NZ that she could call . There was Rosamund vallings but she retired and I don’t think she prescribed antivirals anyway.
The first 7 years id just been to 2 GPs and didnt get far. There was a gp who was known for treating cfsme pts in my city, Brisbane. He was quite knowledgeable but slowly authorities basically stopped him treating cfs pts outside the box and he became a regular stone faced GP.
But before this with my history of several different herpes viruses at my cfsme onset he tested them all again and did a lymphocyte subset test which measures T cells. I was totally neg to ebv where 7 yrs ago tested positive and also produce 'life long' antibodies supposedly??? Neg to hhv6, hhv1/2. Positive to varicella, cmv. T cells all high and report said appears to have a current viral infection.
He said it could be a passing virus and do it again in 3 months and he just suggested some herbs, vitamins etc . 3 month retest all t cells still high and it was really a discussion between both of us about antivirals as he knew of dr Lerners work and dr Montoya as did I, so he prescribed the antivirals. The t cell markers started coming down but took years to come back to normal. Times when i came off antivirals these markers would shoot up again as did symptoms.
Drs ive had since have just followed on from my original cfs drs treatments. I think if i was starting a fresh now with cfs it would be a different story.
