Dry Mouth

[Lotus97]

I've had dry mouth for most of my illness. I suppose most people would point the finger at the prescription medication I'm taking, but I'm wondering if it could be something else like sjogren's syndrome. I just got tested for Lyme and it came back negative although I don't want to completely rule it out since testing can be inaccurate. The doctor also thinks I might have bartonella because of my other symptoms. I do wonder about sjogren's syndrome. I'm guessing it's very rare, but it would still be nice to rule that out.

 

[manna]

as soon as i saw the title i thought id look to see if the poster was on meds, sorry. i wouldn't have posted but seeing as you've mentioned it. that would be my bet. could be somethin else though.

 

[minkeygirl]

You can get tested for Sjogrens. I tested positive one time and negative another. I have none if the symptoms which is more than just dry mouth. I think your tear ducts are dry, more stuff I can't think if right now.

Sometimes things are just what they are.

 

[Helen]

I've had dry mouth for most of my illness. I suppose most people would point the finger at the prescription medication I'm taking, but I'm wondering if it could be something else like sjogren's syndrome. I just got tested for Lyme and it came back negative although I don't want to completely rule it out since testing can be inaccurate. The doctor also thinks I might have bartonella because of my other symptoms. I do wonder about sjogren's syndrome. I'm guessing it's very rare, but it would still be nice to rule that out.

Hi Lotus, I have Lyme; neuroborreliosis, and the 7th cranial nerve is affected on both sides of the face. It means in my case that I have dry mouth and dry eyes due to that- among other symptoms from the Nervus Facialis. Parasympathetic branches from the nerve affects making saliva and tears. http://nervsystemet.se/nsd/structure_171 Maybe a Google translation of this text could be helpful (it tells what I have written). FWIW. Best, Helen

 

[DeGenesis]

Dry eyes is absolutely brutal. My optometrist was telling me that some researches did a survey and people would chop 10 years off their life rather than live with dry eyes. I got Lipiflow which was helpful (probably because my eyes don't close fully).

 

[alex3619]

Dry mouth and even dry eyes is very common in ME. I have dry mouth all the time, and very occasionally dry eyes. I was negative on a test for Sjogrens. Sometimes my mouth is so dry I cannot speak. Its also the case I need either wet food (e.g. soup) or a drink in order to eat.

 

[SpecialK82]

I have dry mouth, nose and eyes pretty severely but no Sjogrens.....

 

[JAH]

I also have dry mouth that has been severe at times. I recently had an appointment with Dr. Montoya's PA, and she told me that they have patients that they think have Sjogrens, even if they test negative for it. A sort of sub acute case. I had never heard this before, we didn't get into it deeply, but interesting.

 

[Rlman]

I also have a constantly dry mouth. It get worse when eat salty food. It was once extremely dry, but a 3 week juice fast made it much better (though probably weakened my adrenals). I also urinate more than normal, which may contribute to my dehydration and dry mouth. Would love to know the cause of this dry mouth...

 

[perchance dreamer]

I got rid of dry eyes when I started drinking a lot more water and added good sea salt to it. I use Celtic. I told a friend this, and it helped her, too. The formula is 1/4 tsp per quart.

I no longer use this much salt, but I still always add some to my drinking water. Some people are salt sensitive, so this wouldn't do for them.

Genteal Severe are the best eyedrops I've found. I keep them in the fridge, and they feel wonderful. AZ is less expensive than our local Walgreen's for these drops:

http://www.amazon.com/GenTeal-Lubri...19&sr=1-1&keywords=genteal+severe+dry+eye+gel

 

[ashler]

Hi,

i didn't post here for a while. i am a male, 37 years old now.

i have not been (yet) diagnosed with SS (all blood tests negative) but next week I am going for a lip biopsy as a gammagraphy I had 2 weeks ago showed my salivary glands are not functioning properly.

i have this dry tongue for the past 2 years. Been to 20 to 40 doctors and they don't know what it is. It came out of the blue in June 2012, but I relate it to a sexual encounter I had with a girl in February of that year. Basically my tongue is dry, a white film covers it, saliva is very thick and sticky, and tongue is very sore sometimes. Teeth marks in the tongue border area also present and tongue seems to be bigger than it should be (macroglossia). I am not a smoker.

as the person who opened this topic I am concerned about HIV-SGD or DILS (a syndrome that mimics SS but its seeing only in HIV+ people) however I had 7 HIV negative tests in the past two years (including an HIV-1 PCR RNA)

my CD4/CD8 ratio is above 2, although my CD4 could be better (515 the last time I checked)

a full detail of my case is documented here
a detailed list of virology tests i have taken is here

any comments of persons (specially males under/around 40) with similar symptoms will be appreciated.
anyone with similar, chronic symptoms?
anyone has here been diagnosed with SS despite all blood tests (ANA, etc.) being negative?

thanks for reading.