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Dr. Teitelbaum's Fibro & Fatigue Center Doctor Causes HEART ATTACK

Seven7

Seven
Messages
3,444
Location
USA
I am getting ready to take a Lumbar Puncture. I have been able to be more upright this last days. Thank you for the info. Will try the raising the legs while laying down see how it works!

TX,7
 

SanDiego#1

SanDiego#1
Messages
280
Location
SouthEast USA
Sorry , I haven't responded sooner. I have had very good success with Ubiquinol for my heart. I take one that does not have soy in it by Douglas Labs. I was taking 300 mgs of ubiquinone and am able to take only 100 mgs of ubiquinol and have the same effects. What a bonus. I do not take any heart medications. They only made me worse with all their side effects. I cannot believe the cardiologist tried to put me on 40mgs of statin when my cholesterol was only 119. I could not take metoprolol or lisinopril because of the side effects. The beta blocker ( metoprolol) caused insomnia, frozen fingers and toes and other side effects. ) Magnesium is extremely important.
Dr. Cheney is very expensive, but if you have the money, go and see him. My first appointment was $10,000.00. If you ever need to talk, please privately email me. I will be happy to tell you what has and has not worked for me..

Kathi
 

Seven7

Seven
Messages
3,444
Location
USA
Neuro thinks I might Have MS. But My lessions on Brain were only 5 and small in size (more like ME lessions) I have typical ME very heavy on neuro symptoms but I drop things, I have difficulty finding words, balance issues, Burning.....
 

SanDiego#1

SanDiego#1
Messages
280
Location
SouthEast USA
Neuro thinks I might Have MS. But My lessions on Brain were only 5 and small in size (more like ME lessions) I have typical ME very heavy on neuro symptoms but I drop things, I have difficulty finding words, balance issues, Burning.....

Inester-Please let me know what they find. I have White matter that showed up in MRI from initial start of my disease.
which my CFS Specialist doesn't think is causing symptoms.Also some of the same symptoms. Are yours constant? Have you had MRI Brain? You know POTS can cause a lot of this too. Hope you can find some answers. I have difficulty with words (except when swearing) Ha!
I will be thinking of you.
San Diego
 

SanDiego#1

SanDiego#1
Messages
280
Location
SouthEast USA
Sicktoolong, you can read more about my story in the general treatment section. There were hearly 90 replies on that thread. That's where I started it when I first came to this forum. There wasn't a doctor section. They added it later and I guess I should have put it in here.....

I am still in heart failure with major damage to my heart....

Kathi- I am much interested in how your Heart Failure is being treated. I am seeing Dr. Cheney. My hero!!!!
Sent on an earlier post. You can reach me on a private chat if you want to. You are also a HERO to all of us.
San Diego#1