Dr Peter Rowe webinar on conditions that cause PEM - Thurs July 16 2015

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Sasha

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Lovely guy, Dr Peter Rowe, and he's a paediatric cardiologist who runs the CFS Center for kids at John Hopkins in the US. He's a specialist in OI and its connection to CFS.

He's giving a Solve ME/CFS webinar at 6-7 pm BST (I think that's 1-2pm New York time?) this Thursday on what should be a fascinating subject:

Solve ME/CFS said:
Presented by Dr. Peter Rowe, a professor of Pediatrics at the Johns Hopkins Children’s Center in Baltimore, Md. Dr. Rowe will review the available published literature describing the various conditions that have been reported to induce post-exertional malaise.”

Dr. Rowe's work first described the relationship between chronic fatigue syndrome (CFS) and treatable orthostatic intolerance syndromes, and first reported the association between Ehlers-Danlos syndrome and CFS. He has directed the Chronic Fatigue Clinic at the Johns Hopkins Children’s Center since 1996, where he is the inaugural recipient of the Sunshine Natural Wellbeing Foundation Chair in Chronic Fatigue and Related Disorders.
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Edit: can't believe I forgot to provide the link:

http://solvecfs.org/smci-2015-webinar-series/

or that you can email your questions to him:

Solve ME/CFS said:
Please send your questions, comments and feedback to: solvecfs@solvecfs.org
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Sasha

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I've edited my top message with the email address to send questions for him. Great opportunity!

This is a terrific webinar series that Solve are putting on, BTW. Here's what's coming up and what has recently been done - and a presentation on PEM by Lily Chu from earlier this year can be viewed on YouTube:

Solve ME/CFS said:
Thursday, October 15
Alan Light, PhD, Research Professor of Anesthesiology, University of Utah

Thursday, December 17
Solve ME/CFS Initiative Year-End Research Review

Friday, April 17-COMPLETED

Lucinda Bateman, MD: Director, Fatigue Consultation Clinic and Co-Founder, Organization for Fatigue and Fibromyalgia Education and Research (OFFER)
“Will SEID Diagnostic Criteria Improve Diagnosis and Treatment?”
View Dr. Bateman’s presentation on our YouTube channel.

View Dr. Bateman’s PowerPoint here:
Will SEID Criteria Improve Dx

Thursday, June 18-COMPLETED
Lily Chu, MD, MSHS, Co-Vice President, International Association for CFS/ME; Stanford University ME/CFS Initiative Community Advisory Board Member
“Post-Exertional Malaise: History, Characteristics, Evidence”View Dr. Chu’s presentation on our YouTube Channel

View Dr. Chu’s PowerPoint here:
Post-Exertional Malaise: History, Characteristics, Evidence

Additional dates and speakers will be added, so check back.

Anyone can RSVP to participate, but space is limited so register now.

Each webinar will be recorded and posted to our website and YouTube channel within a week of the live date, so you will have access to the great content at your convenience.
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S

Sasha

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A little bump for this - if you want to send a question in you need to register (easy) then email it in.

I imagine he's getting a lot of questions, so best do it now!
 
bertiedog

bertiedog

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Have just registered for today, thanks for the notification. I hope to learn a lot because I am not even sure if I suffer with PEM, often I feel better for a limited amount of gentle exercise but I do have a diagnosis of Lyme. That is not to say I don't have terrible problems with my muscles!

Pam
 
S

Sasha

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Interesting, and I'm looking forward to the answers to patients' questions that he's going to provide on Solve's blog.

They expect to post this on Youtube pretty fast - today or tomorrow. :thumbsup:

Thank you, Solve! Dr Rowe is a quality act.
 
eafw

eafw

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Thanks for this Sasha, I just watched it though missed the first bit. It will be on youtube at some point too.

This graph shows difference between controls and "CFS" after exercise in terms of gene expressions. Don't fully understand implications of the gene bit, but quite a contrast.

IMG_0290.PNG
 
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Sasha

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I think that graph was on the front cover of the journal that published it, it was so striking.
 
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Sasha

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eafw said:
do you know where it was originally from ? I hadn't seen it before
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Excellent question - I can never find it and I'd like to print it off, with a reference! I just looked on PubMed and couldn't find it.
 
D

Dolphin

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Kati said:
The graph is the gene expression after exercise by dr Alan Light and colleagues.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3175315/
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Although I believe the data is from that study, I don't think it was posted in that form in the paper.

By searching for "all cfs patients (both those with and without FM)"
I did find it here in
Translational Pain Research: From Mouse to Man
Lawrence Kruger, ‎Alan R Light - 2009 - ‎Health & Fitness
https://books.google.de/books?hl=en...nts (both those with and without FM)"&f=false
 
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