Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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If we got 10,000 donations of 1$ it sends a message of support.
Do you guys know why Lipkin's study was turned down for NIH funding?
504 people deem this research worthy, its not about the amount of money that makes me feel sad or whether people agree with any hypothesis or what they are researching, its about support from this community for good research and researchers in general. If we got 10,000 donations of 1$ it sends a message of support.
So far this says only 504 people support getting good researchers involved in ME/CFS...THAT is what makes me feel sad right now. There is 10,000 or more people on Phoenix rising not all active though I'm sure. How many involved in the online community, not that many compared to the amount estimated to have the illness so that doesn't help.
Hello ME organisations...where are you? Get behind some researchers who have the ability to promote ME/CFS in mainstream research it can only help the cause in general. To me it is basic logic.