I can't see this posted anywhere yet...................so................
Trial By Error: NICE Rejects Current Guidance, Plans “Full Update”
25 SEPTEMBER 2017
By David Tuller, DrPH
Let’s give credit where it’s due. Apparently someone with decision-making authority at the National Institute for Health and Care Excellence (NICE) has a grasp on reality and is willing to challenge the claims of the biopsychosocial ideological brigades. That’s the only logical explanation for last Wednesday’s welcome but unexpected announcement that the agency would pursue a “full update” of the guidance for the illness it calls CFS/ME. From what I gather, that means NICE will essentially start the whole guidance development process from scratch.
In announcing the decision, NICE noted the many concerns stakeholders raised about the existing guidance, which was developed in 2007 and promotes treatment with cognitive behavior therapy (CBT) and graded exercise therapy (GET). At the same time, NICE rejected the recommendation of the internal team to which it had delegated the task of reviewing the literature and producing what was called a surveillance proposal consultation document. That consultation document concluded that no changes should be made to the guidance, After NICE released the consultation document in July, it invited input from stakeholders. The agency had previously indicated that it would announce its decision in October.
I have covered the NICE issue here, here and here. I also sent an e-mail to Sir Andrew Dillon, who heads the seven-member NICE guidance executive, with my questions about the consultation document and the review process. I critiqued the topic expert reports commissioned by NICE, which I received through a freedom-of-information request. One reason I wanted to keep on top of the issue was to make sure NICE was aware that its actions were being observed, and not just in the UK.
The NICE announcement was overshadowed by the same-day release of Professor Esther Crawley’s ludicrous study of a psychobabble technique called the Lightning Process as a treatment for kids. The Lightning Process is a mish-mash of positive affirmations, neurolinguistic programming and related doggie poo. That Professor Crawley received approval for this experiment on minors is unfortunate. Despite some credulous media coverage, the results cannot be taken seriously, for reasons others have documented.