Dr David Tuller: NEW PAPER FROM PACE AUTHORS REPEATS BOGUS ARGUMENTS AND DEFENSES

Countrygirl

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https://www.virology.ws/2021/11/20/...hTX3d69lxMC4R4lqRrqrfSgMMfBCbgTuwlb-iMsnCB2Ec

DAVID REPORTS ON THAT PAPER BY THE THREE DESPERADOES

TRIAL BY ERROR: NEW PAPER FROM PACE AUTHORS REPEATS BOGUS ARGUMENTS AND DEFENSES

20 November 2021 by David Tuller 1 Comment
https://www.virology.ws/.../trial-by-error-new-paper.../...

By David Tuller, DrPH

The October 29th publication of the new guideline for ME/CFS from Britain’s National Institute for Health and Care Excellence (NICE) represented an enormous and humiliating repudiation of the PACE trial and the many related studies of cognitive behavior therapy (CBT) and graded exercise therapy (GET) as treatments for the illness. That means it also represented an enormous and humiliating rejection of the persistent claims by the PACE authors, and their colleagues, that this research documents meaningful improvements in patients.

According to NICE’s thorough review of the data, the main evidence for the effectiveness of these interventions is of either “very low” or merely “low” quality—a salient detail not mentioned in a newly published article from the three lead PACE authors called “Evidence‑Based Care for People with Chronic Fatigue Syndrome and Myalgic Encephalomyelitis.” This is in some ways a sad and revealing document. It is obvious that these three–Professors Michael Sharpe, Trudie Chalder and Peter White–have nothing new to say. The folly of PACE has been exposed. They insist it’s all a big misunderstanding. They repeat disingenuous arguments that have already been rejected.
 

BrightCandle

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The NHS every day it keeps paying these people is showing it doesn't care about science and medicine. This entire episode has done immense harm to the NHS's reputation and the only way I see that recovering is to stop funding the clinics that did this and ensure these people never work for the NHS again. They fabricated their data for PACE, they have consistently lied about the effectiveness of their treatment and they are refusing to accept the science around it. Its gross misconduct and medical negligence, fire them already.
 

Learner1

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https://www.virology.ws/2021/11/20/...hTX3d69lxMC4R4lqRrqrfSgMMfBCbgTuwlb-iMsnCB2Ec

DAVID REPORTS ON THAT PAPER BY THE THREE DESPERADOES

TRIAL BY ERROR: NEW PAPER FROM PACE AUTHORS REPEATS BOGUS ARGUMENTS AND DEFENSES

20 November 2021 by David Tuller 1 Comment
https://www.virology.ws/.../trial-by-error-new-paper.../...

By David Tuller, DrPH
As posted in another thread in this same topic, that paper was written and accepted before the new guidelines came out, so the new NICE guidelines supercede this bad info.

There are numerous papers in the past 12 months that clearly show ME/CFS is a medical problem and identify done of the mechanisms. Perhaps more focus on them, and testing and treating patients based on the research findings would be useful.
 

lenora

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Kudos to @Countrygirl for not just following very ill patients, but actively trying to influence things such as the new PACE presentation.

I can only imagine that you must get very frustrated and worn down....truly, you're a credit to this organization and any others you may be a part of. Very sorry about the young patient who passed a short time ago....things such as that must really hurt. The group in the UK is fortunate to have you. Yours, Lenora.