Your prayers are greatly appreciated and I promise you are being prayed for. You pray for yourself too because your life is just important as any other being on earth.
If you can afford it, I don't think you will be disappointed with Dr. Black. She is very conscious of her time spent face to face. Depending on what she is treating she would probably do phone consults with you after a couple of visits. Towards the end I only saw her every three months unless I wanted it sooner. If I needed medications they would call it in or mail me a script. She was the only doctor that ever checked my DHEA, Vit. D, Thyroid (as in T4, Free T3, reverse T3 and antibodies), EBV, CMV, HHV-6. She tries to get your body as close to normal, if anything is way out before she treats something specific such as EBV. My biggest suggestion is to have everything you want to talk about written down. As a doctor she wants build a relationship with you, but not on your time. Ive had 1 1/2 hour appointments and 15 minute appointments. The 15 minute appointment was probably 45 minutes long, but was not charged for the whole time because we were interrupted a couple of times and got of subject a couple of times.
I spent 11 days at the Mayo Clinic in Rochester, MN and flew out of there with a 40 page question mark and $29,000 bill. They told me nothing related to my CFS. They gave me a full body nuclear bone scan and told me I had arthritis in my knees, which I already knew. The contrast in the lymphatic system was the worse, but was normal to them. It's only checking the rate at which it travels through the body, but they don't check if it gets out of the body?????
We all have bad days, unfortunately it's a lot of them some time. We will beat this thing and I hope this latest discovery leads to something good. I'm going to try my best to be in the optimum mental and physical shape, when something hopefully comes down the pipe. Hope you start having some good days and that they last for awhile.