Dr. Bruce Patterson mentions me/cfs

[keepontruckin]

I liked seeing this comment on Bruce Patterson's twitter

Bruce K. Patterson MD
@brucep13
·
Oct 9

Close to having enough ME-CSF immune profiles to feed into our AI algorithms! Can’t wait to see where it falls in the spectrum of immune disorders with similar symptoms! #incelldx


https://twitter.com/brucep13?ref_src=twsrc^google|twcamp^serp|twgr^author

 

[Pyrrhus]

Close to having enough ME-CSF immune profiles to feed into our AI algorithms! Can’t wait to see where it falls in the spectrum of immune disorders with similar symptoms! #incelldx

Close... but no cigar.
Oh well. Baby steps.

 

[keepontruckin]

Sorry to hear you say that Pyrrhus. I hoped otherwise.

 

[Pyrrhus]

Close... but no cigar.

Sorry to hear you say that Pyrrhus. I hoped otherwise.

Oh, I was only commenting on the fact that his first mention was "ME-CSF" instead of "ME/CFS"!
I wasn't commenting on Patterson's research, which I am not familiar with.

 

[keepontruckin]

Another mention of cfs by Dr. Bruce Patterson· on twitter



Bruce K. Patterson MD

@brucep13

Oct 19

That’s the goal and now we have a first of its kind proteomics instrument to figure this out! #incelldx
Quote Tweet

Musketeer

@AlanMusketeer
· Oct 19
Hi Dr Patterson how hopeful are you regarding a similar Dysregulation of the immune system in M.E/CFS long term sufferers albeit a different Pathogen and do you think your approach to resetting the immune profile could activate recovery in M.E/CFS ; Symptoms are so similar twitter.com/brucep13/statu…

https://twitter.com/brucep13?ref_src=twsrc^google|twcamp^serp|twgr^author

 

[drob31]

I see them mention prevastatin a lot as a treatment.

 

[perrier]

https://letstalkwellnessnow.com/202...ulers-have-in-common-with-dr-bruce-patterson/

A very interesting interview with Dr Patterson. The focus is on LC, post Lyme, Fibromyalgia, and ME. I did find that ME did not get as much attention as the other illnesses. But the discussion about diagnosis and treatment was very illuminating.

My question is: are there folks here who have been treated by Dr Patterson. He did say he has had 100 ME patients. What were the outcomes.

 

[junkcrap50]

https://letstalkwellnessnow.com/202...ulers-have-in-common-with-dr-bruce-patterson/

A very interesting interview with Dr Patterson. The focus is on LC, post Lyme, Fibromyalgia, and ME. I did find that ME did not get as much attention as the other illnesses. But the discussion about diagnosis and treatment was very illuminating.

My question is: are there folks here who have been treated by Dr Patterson. He did say he has had 100 ME patients. What were the outcomes.

Yes, a couple people on the ME/CFS discord have tried it. Some had high rantes, some had normal. I don't think Patterson's drug combo helped any one. However, I do not know how long they stayed with the protocol. Some long covid patients said they did not notice improvement until month 3 and some had a long slow gradual improvement. So it could be several months before you see any results.

 

[perrier]

Yes, a couple people on the ME/CFS discord have tried it. Some had high rantes, some had normal. I don't think Patterson's drug combo helped any one. However, I do not know how long they stayed with the protocol. Some long covid patients said they did not notice improvement until month 3 and some had a long slow gradual improvement. So it could be several months before you see any results.

Thanks for this information, much appreciated. The impression one gets from the interview is that he really likes to get specific with the diagnosis and then target the immune treatment. The interview seemed to indicate a high success rate with post lyme and LC, and even fibromyalgia. Do you have a link for that discord group? Patterson did say over 100 patients with ME were seen. Thanks again.

 

[junkcrap50]

Thanks for this information, much appreciated. The impression one gets from the interview is that he really likes to get specific with the diagnosis and then target the immune treatment. The interview seemed to indicate a high success rate with post lyme and LC, and even fibromyalgia. Do you have a link for that discord group? Patterson did say over 100 patients with ME were seen. Thanks again.

Well I don't have that much experience about it, but it seems like they usually use 4 drug protocol and their "tailoring" is not adding/using 1 or 2 drugs if certain cytokines are not elevated. Just so you know, a lot of people are pretty put off by Dr. Patterson, That he's a media and attention hog or charlatan, and that his treatment is not as effective as he claims. Some people with long covid have had no improvement to his treatment. Many are waiting for his 8,000 patient paper on his cytokine test and treatments, but has been delayed and delayed when said it's coming out "very soon." So, just fyi.

A moderator like @sometexan84, @mitoMAN, @Thebirdman333 , or @Martin aka paused||M.E. will have to send you an invite.

 

[mitoMAN]

if you check out long hauler groups you will notice that his successrate is maximum 5-10% (possibly patients that would recover without treatment as well??)

 

[5vforest]

30:08 – People are taking the CV vaccine as a cure to post lyme disease but this is too soon to determine its long term effects.

Anyone know more? I am skeptical...

Edit: I have listened, uhh..... there is not much there. They discuss it more as a "patients say..." anecdote, more than their own experiences.

 

[perrier]

Anyone know more? I am skeptical...

Edit: I have listened, uhh..... there is not much there. They discuss it more as a "patients say..." anecdote, more than their own experiences.

Certainly publishing results is required here. I spoke to a well known CFS doctor recently who said that Patterson can help with cytokines and correct them. If he isn’t getting good results the question is why: are there perhaps no effective meds addressing the problems? I did note in the talk he was not impressed with Apheresis.

 

[5vforest]

To be honest I don’t even know where to start. I have been told before that the blood based analysis of cytokines is not reliable (I think @Martin aka paused||M.E. has mentioned this).

 

[perrier]

To be honest I don’t even know where to start. I have been told before that the blood based analysis of cytokines is not reliable (I think @Martin aka paused||M.E. has mentioned this).

The problem is, that many of us are not physicians, or scientifically trained--so we have to rely on the honesty and the intelligence and the resourcefulness of the medical partitioners we interact with. If you are saying the blood based analysis is faulty, I will mention this to the doctor next time I speak with him.

 

[junkcrap50]

Anyone know more? I am skeptical...

Edit: I have listened, uhh..... there is not much there. They discuss it more as a "patients say..." anecdote, more than their own experiences.

Annecdotally, a family member who has had chronic lime for 30+ years got tremendous relief from the coronavirus vaccine, but was only temporary (~3 weeks).

 

[Martin aka paused||M.E.]

To be honest I don’t even know where to start. I have been told before that the blood based analysis of cytokines is not reliable (I think @Martin aka paused||M.E. has mentioned this).

It’s at least contradictory

 

[keepontruckin]

Bruce K. Patterson MD

https://twitter.com/brucep13?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

@brucep13
·
Jan 18

Speaking next early next month at an ME-CFS conference in Wash DC. Rolling out new data! #MECFS #incelldx
Quote Tweet

TreatyofWestphalia

@TWestphalia
· Jan 18
Replying to @brucep13
Dr. Patterson, have your treated ME? Results? Thanks.

 

[RYO]

I recently queried whether there are any clinical trials by Dr Bruce Patterson for long covid on clinicaltrials.gov and I did not see any studies listed. Does anyone have any additional information?