TheMoonIsBlue
Senior Member
- Messages
- 442
Hello!
I didn't know where to post this.
I am at the point where I am sure many others have been.
I don't feel that I have ever had a FULL, Thorough evaluation to rule out all the other hundreds of possible diseases, imbalances, etc. that could either being co-existing with my ME/CFS, or I go through phases where I doubt my ME/CFS diagnosis altogether.
Don't get me wrong- I've seen doctors! And had a lot of tests
I have read the CCC time and time again, the new international criteria, and I do fit it. But......... My question: Is there any paper by a known clinician like Bryon Hyde that basically lists ALL the other diseases that need to be ruled out (or could be co-existing) before an ME diagnosis can be made?
I really wonder if there couldn't be something either major or minor that has been overlooked, not tested for, that is essential! But I don't know what or how to proceed. Like for example, "ATypical MS", or "Cancer of the CNS" (how is THAT diagnosed?)
Like wise, afterwards, should a patient proceed with tests for ME like brain spects? Could these be useful in other diagnosis also?
I thought there was a post a while back, with a lot of tests recommended (by Hyde perhaps?) but I am not sure where it is.
Thanks for reading and any help.
I didn't know where to post this.
I am at the point where I am sure many others have been.
I don't feel that I have ever had a FULL, Thorough evaluation to rule out all the other hundreds of possible diseases, imbalances, etc. that could either being co-existing with my ME/CFS, or I go through phases where I doubt my ME/CFS diagnosis altogether.
Don't get me wrong- I've seen doctors! And had a lot of tests
I have read the CCC time and time again, the new international criteria, and I do fit it. But......... My question: Is there any paper by a known clinician like Bryon Hyde that basically lists ALL the other diseases that need to be ruled out (or could be co-existing) before an ME diagnosis can be made?
I really wonder if there couldn't be something either major or minor that has been overlooked, not tested for, that is essential! But I don't know what or how to proceed. Like for example, "ATypical MS", or "Cancer of the CNS" (how is THAT diagnosed?)
Like wise, afterwards, should a patient proceed with tests for ME like brain spects? Could these be useful in other diagnosis also?
I thought there was a post a while back, with a lot of tests recommended (by Hyde perhaps?) but I am not sure where it is.
Thanks for reading and any help.